Hi,
I wanted to come on here to vent my feelings and to share with someone else who may be going through the same situation as me.
I’m 29 and in december 2020 my dad got diagnosed with cancer in his lymph nodes at the age of 67. 9 months on I still find it difficult to say those words.
He has undergone chemotherapy and radiotherapy. The radio caused sepsis in July 2021- we thought we was going to lose him.
His cancer has now spread to his liver, which leaves him with another session of chemotherapy.
He was a big, strong man with a great sense of humour and loved his family. Now, unfortunately, he is weak, bony, frail, snappy and depressed. He has no patience and I’m worried he will give up his fight.
I’m so sad that’s it happening to him, Angry because it’s not fair. Guilty because there’s nothing I can do to help and fearful I’m going to lose him.
Some days when I think outside the box- I think positive and have hope.
Some days it’s as if I’m in a black hole and can’t get out.
I grieve the person he used to be, is this normal? He’s not gone yet but part of him feels that way.
My poor mum, thinking she’s going to grow old with the love of her life is heartbreaking.
At the moment my dads mood has changed. He has no patience, don’t want to talk to anyone and snaps at any given opportunity. He cannot bare us to cry and gets really angry if we do.
I feel helpless and empty.
if anyone understands what I am going through please speak up. It can be a very lonely time and I find it helpful when someone can relate to me, even if it’s a very sensitive/sad subject.
Also, I would like to ask anyone with cancer going through similar to my dad, how do you prefer your family to act around you? Would you prefer everyone to act the same as before cancer turned your life upside down or do you actually like being asked if you’re ok 500 times a day (my dad definitely hates that!)
Any advice welcome.
thank you for reading
Christie x
Hi Christie and a warm welcome to the online community. I'm so sorry to read about your Dad's diagnosis. Cancer is a devastatingly cruel disease that gets those who least expect it and the stress and emotional upheaval to the patient and family members can't be described.
I've a different type of cancer so I'm going to suggest you join our Secondary liver cancer where you'll be able to connect with other members making the same journey. It might also be an idea to join our supportive Family and Friends forum where you'll be able to discuss your feeling in confidence with others supporting a family member on this scary journey. By joining these groups you'll realise that you're not alone, we're all here for you.
It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep writing the same thing over and over. You can amend or update it at any time.
To find more information covering diagnosis and treatments there are pages covering most types of cancers which can be found on our Online Information and Support Section.
Macmillan Support Services also offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two to three working days for replies from our expert team.
Sending you welcoming hugs B xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
Sorry to hear about your dad I can relate.to mostly everything... as my dad has terminal prostate cancer and unfortunately not going to make it... he's snappy sad in pain yellow frail tired memory going... I am heartbroken inside but not shown my dad as he told me to act normal with him as he doesn't want me upset but some days it's hard I'm been strong for him my mam and my kids... but struggling on the inside... hope this has helped you I'm always around if u wanna chat... sending hugs and love to you and your family xxxx
Hi Christie
I've not posted on here before but I am really struggling and in a similar boat to you. I’m only 20 years old with two brothers around my age and my dad who is only 45 was diagnosed with terminal oesophageal cancer in June 2021 and since then it has been a downward spiral. We had hoped the chemo would bring some positive changes to him being able to eat and being generally better so our last days we could get out and do nice things together. However this has not been the case. My dad is loved by so many and has the most amazing sense of humour and is always happy and positive. However since the cancer has taken ahold he’s become withdrawn, pale, fragile and snappy which is just not like him and really difficult to see. I also grieve the man he used to be and fear for my mum who has been with him since they were 16 and they are childhood sweethearts. He’s now stopped taking feed through his feeding tube and is only having water so I fear that we don’t have long left. I too am sick of hearing “it must be so hard” and “if there’s anything I can do” “how are you feeling” and while this sounds awful because people are only being nice I just don’t want to hear it. Reading your post made me feel so relieved that others are going through this too so I had to post.
Hi Kelly thank you for your reply. I’m sorry you’re going through similar to me… it’s so difficult but finding this forum and other people’s stories, really does comfort you knowing you’re not alone.
yes I’m trying to put a brave face on constantly but fail on some days, we have to be strong but it’s ok to cry and let it out.
My dads scan is next week to see if the chemo has worked, I’m very anxious about it but powering through!
I hope today’s a better day for you xx
Thats all we can do sending hugs to u and your family xxxx
Hi rose, sorry for the late reply. Sometimes I find it difficult to find the energy and strength to reply to messages (I don’t know if you feel the same).
I’m so sorry to hear about your dad. It sounds like it’s been really tough for you.
My dad is unable to get upstairs now to bed, so is sleeping on the sofa tonight- which has really upset me. Can’t bare the thought of it.
When you hear people with cancer you really don’t understand what goes off behind closed doors do you.
My dad gets his scan results Friday and as you can imagine I am terrified. He is not hopeful so I’m not either. It’s hard to stay positive when you are hanging on by a thread.
hope you’ve had a better day today. Stay strong xx
Hi Christie. I can relate to everything you say. My dad has recently been diagnosed with terminal cancer and has always been my rock. I seem to swing between being really strong and organising treatments etc. to an being emotional wreck. In the last few weeks I have cried with him, laughed with him and been there for him. He’s now on palliative care and they’ve put him on steroids which have brought some of ‘him’ back. He’s now making very loud and un-PC comments in waiting rooms and I find myself turning in to Sybil Fawlty to compensate... I’m still pushing for alternatives and am never giving up hope for a treatment which will give him longer with us. This is keeping me strong. I dread the day we lose him but I will know that I’ve done everything could and I know what my support means to him. Hopefully this will give me some comfort then. Warm wishes and strength to you. You are not alone. Ali x
Something you wrote stood out to me "I'm grieving"
I get that. I felt that too.
Actually I think that's exactly how my dad felt too, grieving who he used to be, his role as a dad, (and perhaps his dignity at times too)
Grief isn't just about dying, its about loss, so please don't feel guilty about feeling that way. Your lives are upside down and it's s**t. No other word for it.
I can relate to your well wishers comment too. What you're going through is awful and maybe some of your friends will get it but many won't. Despite their good intentions, I often felt that I was making them feel better rather than the other way round.
I know you are not asking for advice so feel free to ignore but I found talking to a macmillan nurse really helped. She helped have the conversations with my dad that I couldn't have when I was experiencing similar to you. I think it helped him to say things he wouldn't say to me too.
You are not alone
Hello lovely people,
Thank you for sharing your feelings and experiences. It's deeply moving and making me connect with a lot of sadness. The word used here, GRIEF, really resonated for me.. my dad has always been the big leader, the top of the pile, the big cheese, and 3 years into treatment for prostate and now secondary bone cancer, he's sad and angry and sometimes mean and yes, I think grieving for all that is lost and will not come back.
It's hard to write because it makes it real. But if you are all brave enough to do so, then I can be too.
Thank you for all being out there, sharing and caring and being lovely.
Sending lots of love and invisible hugs to anyone who just might need one (I give good hugs)
xx
Hi Christie,
Wow! I feel as though you have just written what is in my head x
Your feelings are so alike to mine its uncanny! My dad is 71 (yesterday) and he is my rock he really is, hes having his 3rd round of chemo next week and I so wish it was me and not him :( I cant think of anything else at all Im a mum of 3 and a wife I have a full time job that I cant seem to concentrate on at all.. and I am taking dad to most of his appointments as he is the one that drives not mum and hes too weak at the min.
I feel like im drowning inside but outside ..im fine (I dont want to say out loud im struggling because then its real.. and how do I admit that to my dad when he is going through this not me)
I just want to hug dad and be around him all the time but thats not normal, so Im trying to be normal (as I can).
Everyday is a new day... and I think we have to just do a day at a time at the min, todays a sad day and I'm gonna roll with it and let the tears come...
Sending you all my love and healing, and I have just read this on another thread:
tomorrow is not promised, but it always has potential! (It made me smile) xx
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