My Dad and MDS

FormerMember
FormerMember
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I think I'm probably here to try and express my thoughts, its 1.20am and I'm up at 4am for work!

So this isn't a new diagnosis, my Dad was first diagnosed with MDS (Myelodysplastic Syndrome) about 2 years ago. A huge kick because at the time my best friend was fighting throat cancer.

I feel kind of stretched out like a piece of elastic, my friend passed away and then I moved into wrapping my head around my Dads diagnosis.

My Dad is extremely practical he's organised his funeral, sorted his will and as he refers to it quite openly he is slowly dying. I on the other hand am struggling to think about a time he won't be around and especially when he speaks so matter of fact about his own death.

He has had a scare with Sepsis, which was like a wake up call. Living so far away from my parents when I found out he was poorly I struggled to get my Mum to understand how serious his condition was, thankfully he pulled through.

I read a good piece recently called The Long Goodbye, certainly something I could relate to.

Anyway I'm here to just offload a little, listen and if anyone is going through a similar situation share some thoughts.

  • Hi ,

    Sorry to hear about your dad and your friend. I can totally relate to the bit about you dad being really organised and somehow finding it harder to process your own emotions. Also very much relate to the issues around sepsis, it can be very frightening especially with the speed it can strike. While you probably do not feel very much like a classic "carer" that you care is clear from your message how much you do and that can be very hard when you are far away. 

    One thing that was really helpful with my parents was that they has arranged enduring powers of attorney, this was really helpful when my day became really ill in that my sister was then able to manage his medical and financial affairs.

    <<hugs>>

    Steve

    Community Champion Badge

  • FormerMember
    FormerMember in reply to src60

    Hi src60

    many thanks for your reply and apologies for taking so long to answer, 

    Have just visited my parents for the weekend which was lovely and being able to sit down and talk not only to my Dad but also my Mum about how they are feeling.

    It certainly makes things challenging when you don't live close, so I do understand my Dads need to be thorough and I also feel like he is trying to take the burden away from us by being so organised. At times it is a struggle to talk so openly about somebody passing away, it seems very surreal to be honest.

    I do have power of attorney should either of my parents be unable to make certain decisions, I do feel as though my Dad has covered every eventuality, maybe this is also a process he finds comforting ? He has always been in control and organised.

    Once again ty for your kind words and advice

    SD