Hi there
My mum was discharged from hospital on Monday back to home at her request as there are no further treatment options available to her and she has been valiantly fighting first bowel and now lung cancer for over 10 years.
My husband and I currently live with my parents and we have moved a whole room full of clutter into storage in 2 days so we could have a hospital bed etc brought in so she can have a microenviroment to live in downstairs.
I just want to ask how people cope with trying to learn to help their loved ones while dealing with their own emotions? I just feel useless and helpless as I just want to make this better. Seeing my mum (and dad) struggle is honestly like torture. I also know that this will only get worse which terrifies me.
My mum is still upbeat but finding each day harder. Eating is now becoming an issue and she has nearly lost all the feeling in her legs as well as the general symptoms of her lung cancer. My husband is absolutely amazing and doing so much to help but I am just so scared as I honestly dont know what to expect and am too afraid to ask. My Dad is 74 with his own health issues so is finding this all emotionally and physically draining. He has recently also had to go through the loss of his own mother and uncle.
I am so sorry for waffling and negativity, I just need to vent and am hoping for some advice from people who have been or going through the same feelings on how to support my parents and myself.
Thank you xx
Dear , I am sorry to hear your mum has come to the end of her treatment options, but respect her decision to return home. The focus should now be on quality of life both for you and your mum. You have taken the first useful step of creating a practical living situation which will make it easier to provide the best possible care for your mum. In a situation like this knowledge can be useful even though you might initially find it upsetting, to remain in the dark about how things will progress might ultimately cause you more anxiety. I assume you have been referred to palliative care services, their nurses are always available to answer any concerns you may have. Also your local hospice is there to help your mum and the family as a whole and the same with your local maggies centre if you have one. Take all the help you can as this will mean you can spend more of your valuable time being with your mum.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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