Telling family about your diagnosis

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New to this community.  I was diagnosed with bowel cancer 18 months ago.  I told my mum about it and specifically asked her to allow me to choose who and how to tell because it was early days and I knew little about forthcoming  treatment or prognosis.  She totally ignored my wishes and started telling extended family and people outside of the family too.  I found this almost as painful as my diagnosis and it's basically broken the relationship I had with my mother.

I never see anything written about my particular experience so wondered if anything similar had happened to others?

  • FormerMember
    FormerMember

    deleted

  • Thank you for your kind reply.  The thing for me is that I'm actually open about my diagnosis, to those who I choose to tell.  The article was interesting but doesn't cover the subject of family members disclosing to others on your behalf against your own wishes.  I guess I was wondering if others had had that specific experience?

    My mother doesn't accept that she's done anything wrong at all.  I realise that she was reaching out for support, but she prioritised that over my own confidentiality.

  • FormerMember
    FormerMember in reply to Fresh-fruit

    Deleted

  • I feel a bit lost on this forum.  No one seems to have had the same experience as me.

  • Hi

    ive had a similar experience. I wanted no one to know. My mum told her neighbours and friends and my sons headteacher who told the teachers etc. 

    I was fuming. But too tired to argue. Life is too short. My energy needed to fight cancer not people. 

    Try to forgive. I’m sure no malice intended 

    xx

    Tinker bell xx
  • Yes, you're right, life's too short to stress about such things.  But thank you so much for your message.  I was starting to think I was the only one who was being disclosed against their will.  Send best wishes. Martin

  • Hi , in my time on the forum I have seen fairly few posts similar to yours but have seen a number from relatives who have been in the position of being told of a loved ones cancer diagnosis but told not to pass the information on and they have often found that very difficult. 

    It might be helpful to your mother to look at our pages on I'm looking after someone with cancer especially the links on the emotional effects of caring and the importance of looking after yourself.

    I know with my wife and myself her cancer has brought us closer together than ever, but it has not been without bumps in the road. 

    <<hugs>>

    Steve

    Community Champion Badge

  • Thank you Steve.

    Your reply is much appreciated.  Nice to feel less alone as regards to my situation.  Myself and my partner have also been brought together most beautifully as a result of my diagnosis.

    Best wishes to you and merry Crimble to all.

    Martin