Hi all! I just don't know where to start! I'm so emotional and drained. My dad has just had his 2nd round of chemo after being diagnosed with lymphoma about 6 weeks ago. He has gone from being a very fit man to a very poorly man who needs a wheelchair to get around. He has been in and out if hospital and I moved in with my mum and dad when this all started and have been here ever since. My life has gone on hold and I sometimes feel very isolated. Twice when I went home to be with my boyfriend for the night my dad got readmitted and I felt awful! My dear mum is very partially sighted and can't really cope well on her own. My "friends" have disappeared and not bothered to keep in touch and this all feels totally unreal. I have had such a rollercoaster of emotions. I've been the one who has been making sure dad has the right care and that we know what is going on. I give him all his meds every day and even given him his chemo. It's all just a bit much and I sometimes feel very alone.
Hi Really sorry to hear about your Dad. I myself have been through a similar thing with my Dad, I helped my mum nurse him through pulmonary fibrosis which was very debilitating right up until the end and now my poor mums lung cancer has returned and things are not looking good for her. There is nothing worse than feeling that you are isolated. Have a look and see if there are any groups that you can go to with your Dad if he is up to it. Me and my Dad went to a group for his illness where there were people in the same situation and every week there were different people that gave a talk at the end about the illness and even about when it came to end of life care which we all find very hard to talk about and it really helped us to know what we were going to be facing. Have you been assigned a Macmillan nurse for your Dad, if not ask about this as they are so helpful and can help with things that you might need around the home to help him and they also give support to the family. I found it really helpful when they visited my dad as I could get things off my chest that were worrying me. There is nothing worse than seeing someone you love suffering. I know that you want to be there to help as much as possible but you also have to think of yourself. The last thing you want Is for you to make yourself ill, as awful as it sounds you need break. Do you have any family that could help out for a day just so you can do something for yourself! You will be going through a rollercoaster of emotions its only natural but stay strong and don't be afraid to ask for help. I am now looking after mum and am going through it all again. You can only do your best and I am sure your dad is so grateful he has you by his side.
Take care
Dotty a
Hi , I just noticed your post on the main site feed and just wanted to drop in past from our Lymphoma Forums.
I am Mike Thehighlander and I have lived and been treated for my type of Lymphoma for over 20 years so I do have a good understanding what your dad is going through.
We have a few Lymphoma Forums listed below:
General Non Hodgkin's Lymphoma
These forums have both patients and carers navigating the Lymphoma journey.
If you know what one of the 80 types of Lymphoma your dad has please think about connecting in with folks who are walking the treatment walk.
It is normal for someone going through Lymphoma treatment to be readmitted into hospital due to infections as the immune system will be compromised for a period of time following treatment.
You may also find our various Macmillan Support Line Services helpful - call them on 0808 808 00 00 and talk with folks covering Emotional Support and Practical Information. Clinical Information and Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.
A blood cancer journey can be a rough one but on the whole the treatment used can be effective but it can take time.
((hugs))
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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