My dad is dying and I can't process it..

FormerMember
FormerMember
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Hi all 

My dad is at the end of his life and I am struggling to process the rapid deterioration and his impending death. 

He was diagnosed with head and neck cancer in January last year. Had chemoradio and was told at the time it hadn't spread anywhere else after a scan. 

He recoevered well from the treatment and although he had avoid peg fitted he didn't use it and regained the ability to eat orally. 

He had a PET scan in May and got the results in August, this showed the head and neck cancer treatment had been successful but there were small nodules on his lungs. He was devestated and I think there and then he gave up. 

He was already malnourished due to alcoholism but gave up the drink on diagnosis. 

He has just rapidly gone down hill and I got a shock when I saw him in October- I live 330 miles away. He wasn't eating as he said he had no appetite and he was admitted to hospital with hypercalcemia after a bit of a fight to get him diagnosed with that as I knew there was something wrong with him. 

He was told in hospital he would now receive palliative care. 

I haven't felt remotely supported throughout this and being so far away is made worse by the fact that none of the healthcare team contact me. 

The hospital took out his food peg for some reason and so he couldn't receive food via that and is not eating at all. He was sent home and they said he has significant mets and suspected bone mets. He hadn't removed from his bed in three weeks and hadn't eaten only drinking fluids. One saving grace is he isn't in any pain apart from when moved because of his skeletal frame being so thin. 

He can't talk hardly and can't complete a sentence, he just sits there.. I don't know what he is thinking or feeling, but he told my Aunty he wants to die.. 8 weeks ago we were walking around the allotment and laughing- I can't comprehend how he has gone from having small nodules to full blown mets in such a short space of time.. one doctor told me the cancer isn't killing him it's the not eating. 

So much conflicting information from different doctors has left me feeling confused, angry and distraught. 

He is only 67 and was a jockey riding with lester piggot in his time, we had places to go still and I feel so sad knowing he can't go now, I'm going up to stay with him at the weekend and I think he is hanging on to see me before he goes- it's so difficult as all the family abandoned him through his alcohol abuse and I've had to look after him for over ten years by myself and I've got four children, work and am at uni. 

I only moved three years ago for uni and he was fine then and had cut his drinking down. He never was a big talker but he fought so hard with his chemo and I feel it's been for nothing, the Macmillan nurse said today he's had the lung cancer a long time but how can that be? I feel he's been forced to have chemo not knowing the full situation and he could have decided not to have it and enjoy what time he had instead of suffering. I hate this limbo feeling, he's here now but soon he will be gone and I cannot process this.. is anyone else in a similar position? 

  • Alex and Steph, condolences  to you both in your loss, such a sad time for you both xx

  • Dear Alex,

    I know the path through grief very well. Sometimes, after my mother died suddenly when I was young, I felt the grief would kill me. It's something we all work through one way or another. I used to talk to her, and still do sometimes. My dad and my brother died (24 years apart thankfully) and my very brave niece, who was only 36, died from cancer. I light candles and send them my love.

    What you did for your dad was lovely; you cared for him so beautifully. The numbness fades gradually, but it can resurface unexpectedly.  I wish for you comfort in your grief and send you virtual hugs and love. Take care of you.

    Linda xxx

    LoobyLou
    If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish. 

    Click here to see how to add details to your profile. It helps everyone to see a little about you

  • FormerMember
    FormerMember

    Hi, I thought I might be able to give some advice as my mum passed away from lung cancer with Mets about a month and a half ago. 

    My mum was ill for a lot longer than we thought she was, even than she thoughtt she was. But I can say that cancer is not simple, nothing showed up in her blood work even though she had a tumour on her lung, and the beginnings of tumours on her brain. I've heard from many people that lung cancer doesn't really produce any symptoms until it's too late and has already spread. On her notes it was "suspected primary lung cancer with Mets to brain and adrenal gland". They can never be sure where it started but I understand your frustration. It's completely possible it may have started in his lungs but sometimes you can be stage 1 without even having much change to the tissue. From what I understand once it gets into the blood and or lymphs is the main problem.


    We had access to her whole medical folder when she came home to pass away, which I read through a couple of times to understand things, so if you'd like to ask anything then youre more than welcome to.


    I know it's very hard for you, the thing that gives me solice is that she's not in pain anymore, and she it was a dignified and peaceful ending for her. Even though it was far too quick. She was only 62.


    I understand your pain.

    Hope some of this helps with any confusion that you may of had and please again, don't hesitate to ask me anything :) 


    Amy x

  • FormerMember
    FormerMember in reply to FormerMember

    Thank You all for your lovely words. 

    It's been over a week and I feel numb. I went to see him in the chapel of rest and was glad I did, he looked so peaceful- I don't feel that he was there- that was just his body.. I didn't feel upset either which was unnerving. 

    I wonder if I'm not grieving yet.. or did the grief process begin before he died.. I don't know.. I just know I would do anything for another day with him. My 12 year old daughter is struggling with it, she feels guilty for all the times she nagged me to go as she was bored! 

    I've explained guilt is part of the grieving process we all feel it.. 


    He had a wonderful funeral with a horse drawn hearse through his old haunts. He was a jockey and trainer so this was very fitting. I just felt so incredibly sad that he wasn't there to see it.. or to enjoy the sunny day either.. 


    I'm sorry for your losses too. The finality of it is just hideous. My world is a darker place right now xx

  • Dear Lexi26,

    Grief has a habit of stabbing you in the stomach just when you think you're getting over it. We all go through feelings of guilt, utter sadness and feeling bereft. My stomach and heart felt empty, like a raw pain that can't be eased. But my beliefs tell me that your Dad was there seeing it.

    Please assure your daughter that her feelings are perfectly normal. I went through that with my Grandad. I chose to spend my money on a coat instead of going to see him immediately and decided to visit him the next month. He had gone by then. It's always a journey, like dark rooms and tunnels of pain with occasional relief. The numb feeling is just as normal too. I'll be thinking of you as you go through it all. 

    Love from

    Linda xx

    LoobyLou
    If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish. 

    Click here to see how to add details to your profile. It helps everyone to see a little about you