Having a bad day

Hi Sue,

My mum's got one of those cushions.  She won't sit on it in the armchair - says it's uncomfortable - but we put it in the wheelchair and she says it is comfortable there.  I'm going to try and get her to sit on it in the armchair now.  She's acting like my 16 year old - everything is no good even though she hasn't tried it...

I will ask about the occupational therapist - hadn't thought of that - thanks.

I'm glad Alan was a bit brighter and you managed to get out today,  It's good to do normal things   We all need them.

I have noticed the funeral adverts and that so many programmes have characters with cancer in them. I think we are just noticing more because of what we are going through.

Off to bed now.

Mum's so much brighter this morning.  She hasn't taken any extra morphine since yesterday afternoon and she been smiling a bit more this morning.  She's also managed to have a shower and wash her hair!  I was hovering as I was a bit worried it would be too much for her, but she did it!  So pleased.  

So lovely to hear that

So busy with work and travelling to see mum not had chance to read/respond but will catch up tonight i hope as staying at a hotel. 

All the best to everyone on our journeys with loved ones

X

Thanks maisiemae.

How are you doing?

His all having mental day chasing gp for morphine patches them saying the lady who does prescription's is out is NO HELP. Paracetamol not enough of course!!

However all sorted picked them up read leaflet...says affects liver function blood tests and mum has blood test for this pre chemo on Monday. Phoned nurse who said take them anyway she'll tell the team. She checked last bloods and mums liver under pressure then too...said may be disease. First I've heard re liver...bones remaining kidney loads in lungs...but not liver.

We try them tonight.  

Dad just gone for scan was very grumpy and ill. ..has to have up the bottom probe so bot surprised and had to go alone...as mum too ill.

Shopgood suggested mattress topper to mum she said no they're sweaty. ...hmm mm letting that rest a while...she said no to wheelchair before and spine cushion now uses all. Good luck with the fortisip! 

Just going to get lunch...bit late!

Elenium great about your mum so nice she was smiling. Makes for a great day when it happens. 

Maisiemae how you feeling?  How's Mum?

Mum had aromatherapy and some reiki yesterday afterwards she slept then got up had no pain chatted giggled and ate a whole meal. It was extraordinary.  It's a course of 6 treatment's its her 4th at the hospice she feels great afterwards it is amazing. ..symptom relief and temporary. ...but not toxic... I'm impressed. .

Hugs to all.

Am a bit loopy aftet gp surgery knobs today so sorry if I don't sound right...

Jx

Meant not surprised!  Although "bot surprise" seems appropriate given the probe...

Hi Jenny,

Sorry you're not having a very good day. I'm sending you all big hugs.

I don't know if you saw my previous post about mattresses, but may help:-

There is a company that makes hospital type matresses and you can have them at home.  They will make up a double bed size if ordered.  Apparently it's about £190.  Our palliaive care nurse told me about them.  I'm going to look into one for mum. Their website is healthandcare.co.uk and they offer free delivery  all over the UK.

That's good about your mum yesterday.  I'm going to see if I can get some aromatherapy for my mum.

She's been smiling more today.  Tipping Point is one her favourite programmes and lately she just sits there saying nothing.  Today she was getting really involved in it.  It was really good to see her like that.

My sister's at mum's and staying the night so I can have a worry free night for a change.  Might even go out...

Either out or in with the worry eased is BLISS. ..my sister away for weekend. 

Both parents currently EATING. .should be on the news sod the Trump stuff!

Yes mattresses...apparently no new ones needed...ahem...that'll change when pain rears head later. 

Enjoy your time off.

Jx

Hi Jenny,

The mattress topper I got was from Argos. It's a Silent night, it's a range called Airmax. It's got mesh sides for improved breathability & air circulation. I suffer from hot sweats & I'm finding it ok. Some while ago I also got some gel pads through a Wowcher offer. I've put them in pillowcases & when I get too hot I just lay on them. Brilliant invention. 

Your poor Dad  I sometimes think that we look on our parents as invincible, but advanced age & illness are always lurking.

After a reasonable day yesterday Alan's been really low today. No energy, doesn't want to eat, & when he speaks even his voice sounds like it's had enough. 

I know I said about looking for our little patch of blue sky, but it's been sadly invisible for me today.

Maybe we should all meet up somewhere when our loved one's journey is over. Then we could have a proper Group Hug

Sue xx

Oh Sue, I'm so sorry Alan's not good today.  I wish I could give you a hug.  I'm sending you a virtual one instead.