Any advice for me?

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Hi there,

I'm new to this site, and I'm worried about what's coming next. The medics identified areas of opacity on my lungs through an X ray taken an A and E. I was recalled for as further X ray in October, and subsequent CT scan.  I've now been referred for a PEP scan and full lung function test and have been urgently referred in for a referral for the respiratory team at the hospital.

I thought it was a broken rib! Does anyone have any advice for me? I'm not in too much pain. I'd welcome chatting to anyone else who has been through similar.

I'm trying not to second guess the results of the next tests, but it is hard not to think of worst-case scenario. How do you stop your head falling off in the circumstances? It's all happening so quickly but not quick enough if you see what I mean. Not knowing what is wrong is the worst bit. Any advice gratefully received. 

  • The medics can be so bloody grim and blunt can't they? It's almost like they are trained to give you no hope whatsoever, so if you do better than expected it is a nice surprise! I swear the surgeon who dealt with me was autistic. I'm a teacher by trade, I know ASD when I see it!

    I've had some good advice today - meet the oncologist in full get-up. Look like someone who can afford to sue them! Joy It made me smile anyway! Joy 

    The Chemo and Immunotherapy place is lovely. I've already seen the hairdresser, they can't do enough to support. So I'm going to the right place. Like you say, the not knowing was the killer, at least now I have my head around the next steps, I can withstand whatever happens next. Even if I do end up a bearded baldy lady. Joy 

    You sound well, and I'm glad about that. Cancer is a word, not a sentence, I heard. xx