Lost left “die in your own home” so lonely

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Sent “home to die no treatment “ from hospital…had no treatment and on palliative care secondary liver cancer …still alive year later!! 
now in pain and scared , so exhausted lonely and cry at anything ..but I’m a chatty brave …”oh you are SO strong” so strong woman

but so scared of dying alone…although if one dies …is there an awareness of death? 
can’t really tell how scared I am ..if I try or am caught crying ..it’s “ you’re a strong woman” so I cry alone in between visitors spose it’s a release 

I’m writing this , spose this is a release too…thought cancer wasn’t sposed to hurt I was told, so in other words don’t speak about it !

  • Savvy, I'm glad you have carers that are awesome, that's company and outside world contact at least.  I'm sorry to hear you were just "sent home to die". That kind of talk needs to be outlawed.  I've been a nurse in palliative care for many years (retired now) and please believe me morphine is not given to shut you up and it's never increased because you may be dying.  It's given for pain relief and breathlessness. Firstly if you are currently in pain please ring your GP and let yourself be free from pain. You don't have to be and there are other pain killers than morphine.

    Secondly the oncology team are made up of the consultant who has been coordinating your cancer treatment and the other doctors who work under the consultant.  There is usually a specialist nurse who works in that team and she/he can point you in the right direction for someone in the community to now coordinate your care. The other place is your local hospice who may either have their own team of specialist community nurses who are trained in symptoms of life limiting illnesses.  Sometime Macmillan nurses may have been funded in your area and they do the same job as the community nurses based at the hospice. District nurses based at your local health centre can also help you out.

    Time to stop being brave with the pain hon, there really is no need to suffer at all. You deserve to be comfortable right now and also to be able to talk to someone face to face about you and your life. Please reach out and contact someone.  You'll also be brave for doing that and not for just soldiering on in pain. You'll be able to enjoy time with friends and family more too.  I'm sending you hugs and hoping you find one of the people I've mentioned above asap. 

    Don't hesitate to message on here hon about anything. X

  • Hi Savvy, I hope you have been able to access some positive support hon and also got some pain relief x