Hello all.
I was diagnosed with colorectal cancer back in March 2017 - was a T3/4 N2 M0
I had the usual 5 weeks of radio / chemo therapy which finished mid september with an 80% reduction in the cancer (yeyy!)
Jan 16th I had an anterior resection with ileostomy - without doubt one of the lowest points in my life. I was in for 2 weeks, had strep A in my would which they were worried could easily turn into necrotising thingy flesh eating bug hence tons and tons of antibiotics.
During the first 3 days after surgery if there had been a button to press to end it all I would have pressed it.
Around day 7 i suddenly had a turnaround - within 24 hours i went from feeling terrible to feeling hopeful and grateful for life. I had many challenges, not least the fact that my stoma decided to pour out 3 litres a day of fluids, meaning more drips and rapid weight loss. I lost 25lbs in 2 weeks (i could stand to lose it anyway)
I was finally allowed home, all the time i was worried for my wife who is quite a lot older than I and doesn't drive or handle many things well but she had done an amazing job.
Following the op the surgeon gave me good news - they got it all and path staging showed no lymph node mets and they were very very confident.
Today I went for a check up - it's just over 4 weeks since the cut. They told me that i have a small cyst on my liver which they saw / felt during the op (first time mentioned) and they want to do a baseline mri on it. nothing to worry about, most likely caused by the pre-op chemo.
So, i see it that i'm now cancer free, infection free and by the looks of it my ileostomy might be reversed much quicker that i originally expected - could be as little as 3 months as no post op chemo is needed.
Why then, when i've beat this bas&*^rd, do i sit in my home office and cry at least 3 times a day? music, movies, sometimes just a picture or comment on facebook tips me. even now i've got tears writing this.
I'm lucky to be financially secure - my business runs itself and does pretty well, i adore my wife and it's mutual. I have a strong support network and some really good friends and family.
so why am i so sad and lacking in hope or a vision for the future. It's like i don't care about life at all. There's bound to be more sh1t around the corner right? - it's all pretty pointless anyway cos we all die at some point and in 50 years no-one will know, think about or will give a toss about anything I did, went through or survived.
Despite being a very good self help kinda guy and i'm pretty smart, I just can't find a way to lift this cloud of despair. I know all the psychology, what i should do o change my state etc - it just doesn't make any difference.
anyone else that has actually won this fight feels the same way?
or is it just me?
Hi H, you're very welcome.
for your info i'm 54 so not a million miles away from him.
Before my cancer I was also very successful in online commerce, literally making millions. I did that through something that i and many others call 'drive' I was very driven for years.
Cancer takes away your drive because what you were working towards suddenly becomes rather trivial.
The way i've been working back to a 'normal' life is by finding something that drives me again. In business it almost runs itself because i set staff on in another country to handle it for me and i'm happy to leave that be. Before i was working 16 hours a day 7 days a week - i don't want to go back to that because it's just giving your life away for money. you only need so much.
However success was something that drove me so i've been working on another business project. that's what has 'bought me back' I have self esteem, pride and a feeling that i'm going somewhere.
I recognise that when you are 'driven' that it's the first thing you think about when you awake and the last thing on your mind before you sleep. being driven that way makes you continue to put one foot in front of the other and just keep going. That is working for me.
Not everyone has this 'driven' personality but it sounds from your reply that your husband has - if he's respected and successful in work then he will have been driven. you just dont get that way without drive. Most are just happy to go to work mon-fri, take the paycheck and a week in Majorca and they're happy. - nothing wrong with that of course, but it's not good for someone who is a driver to face that.
If this does sound like him then i'd like to make a suggestion.
To get back to life he needs a drive - but someone else has to give him a reason.
you say that work are in no rush for him to return etc. I don't think this is doing him any good.
Can i suggest that you get in touch with work and get them to giddy him along. he needs to feel needed and not humoured. get them to tell him that they are struggling without him and ask if he could do just a few hours to start with. but tell them to properly work him and not give him work 'just for the sake of it' - because he will know.
Put him to work, get his drive back for feeling useful and getting self esteem and I believe that everything else may just fall into place in the rest of his life.
A driven man needs to be more than a husband and father - he needs to be MORE.
feel free to ignore this if it doesn't feel right to you. but from your reply above he sounds more like me. if it were me (and it is) this is what would work (and is)
By the way, if there's a chance of seeing this online then we should delete and continue by private message or email.
I truly hope that i'm helping you and i'm sending very warm thoughts your way.
Hi Soultrader
Thank you again for the good advice. You’re exactly right about my husband, he was very driven and very tenacious and ambitious. I think the cancer and the treatment have really knocked his confidence for the first time in his life very badly. He has v v little cancer in his family, non in his immediate family and was always quite confident in his body and his health. He didn’t drink v much at all and worked out a lot, he looked pretty good for a man his age.
I think getting some serious work done would really benefit him. The problem he has at the moment is chemo brain, where he can’t even focus enough read a newspaper. His work is quite intellectually challenging, as well as being an environment in which confidence ( or the outward appearance of it and that whole image) is almost mandatory!
I will see if he can start little by little from home. We are in the same industry and I will start suggesting he gets onto his systems just to chat to me on line rather than on the phone. As his chemo fog lifts, I may then talk to his work about setting him some work. They are a US firm and V correct and above board in everything they do, so not sure they will do anything without his say so but I will try.
I will let you know how we get on. I can’t wait to leav3 this awful year behind us!
H x
I bet you can't H
you have an advantage though in working in the same industry - at least you understand what he needs to be able to do his job.
I truly wish the best for you and your hubby to get through this together. it's hard for both sides and often both sides turn a little introvert without realising it.
sending you both lots of love and hope - I won't pray for you cos i don't believe in all that god crap but i will be thinking of you often in the weeks ahead. Please do keep in touch and ask me anything you like. i'm here for you
xx
Hey H. two years on now for both of us. The lockdown got me into a dark place again and i came visiting here - how are you? hope you reply.
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