Chemo late effects on taste

Hi Elca

I had the same chemo in 2022 for my endometrial cancer. 

I had taste changes during treatment- metallic taste, things tasted off etc. Things that I normally enjoy didn't taste right. I also had a sore mouth. 

For me it started to get better once treatment was done although I still have some foods that I used to enjoy that I no longer want. 

It sounds like you have done the sensible thing in getting things dentally checked. As taste and smell can be related I wonder if it is worth asking about that? 

I did find some info that may help managing things that may help while you work out what is causing this. 

Managing Taste Changes

You could also give the Support Line a call or post your question to one of the nurses who may be able to give you some advice. 

Ask a Nurse | Get answers about cancer | Macmillan Online Community

Jane

Jane

Thank you so much for replying. I didn't get any altered taste during the chemo, so I thought I had got away with that!

I am slowly coming round to the fact that this bad taste in my mouth may be a late effect of the treatment , the same as my peripheral neuropathy in my feet.

Thanks for the links to managing altered taste. I did ask my oncologist but he was of the opinion it was not caused by the chemo as I didn't have it at the same time as the chemo.

It is good to hear from someone who has had the same as me, so thanks again for your support. 

Elca

Ask the team what they can do to help. Maybe they can give you more advice and support. Hugs. 

Sometimes viruses can do this - you may remember it being one of the classic symptoms of Covid. Other drugs (eg steroids) can also affect taste. It sounds as if you may have been living with this for some time. I hope you have been able to work out what foods work for you. 

Many thanks for your reply. I had the bad taste before I had covid last August and I have come off medication which may cause this. I have just started treatment for oral thrush so fingers crossed that may be the answer!