Hi all, new to this group!
my dad has small cell lung cancer and has had 2 lots of chemo so far. The frost was 31st dec and was only carboplatin, the second was 3 weeks later on the 22nd of Jan this time carbo and etoposide (around 2.5hrs) next day he was ok other than feeling somewhat achy and restless!
he also had filgrastim injection for 5 days, so not sure if this has made it worse?
but he seems to have what’s called chemo mouth? His mouth is so sore he’s finding it hard to eat as it hurts, he describes it as fire and gravel! He’s tried salt water but was too painful and the dr prescribed a steroid to use as a mountwash, again too painful. He does have an appointment tomorrow, but I was wondering if anyone else had such an experience with this? And any other remedies he could try! He is eating only soft foods at the moment. And nothing acidic or anything too irritating!
TIA
Hi Rnfnrslash …. sorry to hear about your dad.
Chemo mouth is very uncomfortable, I found that we had to try different mouth washes as time went on so he does need to talk this through with his team.
The one thing that helped me a lot was chain sucking blitzed fresh pineapple that is put into ice cube trays and frozen…… at times I was given ice poles to suck as I was having my chemo as the mouth is the area of the body that reacts the most.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you look to join and post in our…….
……. support group.
This group is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same support journey.
As for the practical and emotional challenges of supporting your dad and indeed yourself you may benefit from joining and posting in our……
Carers only (if you are their caregiver)
……. support groups where you will connect with a wide range of members navigating the exact same support challenges.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
((hugs))
