Horrible tingling in fingertips

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Hi Everyone 

I am just wondering what people’s experience of this sensation was like. I might seems unpredictable. Did any of you find that it got better before your next infusion? I’m just trying to work out if it’s worth investing in a few gadgets. I am hoping it goes for a bit! Thanks in advance.

  • Hi Jools63. Sorry but you will have it for a while or to say still have a slight tingle and wrinckled finger tips, also a fuzzy feeling in the soles of my feet, this is 12 months on, speaking with my Oncologist last month hse say it will take along time to go but as she said a little inconvenience for a great result and I couldn't agree more with her

    Keep going and unfortuantely you may have other issues to deal with but don't forget your team will be there to support you all the way through

    Take Care and hope all goes well

    Tony

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  • Thanks so much for your reply. I suspected that might be the case. I’m quite surprised how quickly I’m managing to find solutions to some of the problems. I expected the door handle, fridge setting it off, but not picking up my toothpaste! It’s early days for me, but I’m trying to find humour in each new surprise. If the oxi means I can get the next surgery sorted, it’ll be worth it’s 

  • It's worth investing in some gloves.  I found fingerless ones were OK but I also bought some thin cotton ones.

    I'm 3 years out from chemo and still have altered feeling in the front of the soles of my feet.  It went away in my hands and it's rarely painful any more.

    Yes for any gadgets which might help.  The neuropathy won't suddenly end when chemo stops and nerve damage recovers slowly.

  • Thanks for your advice Lolie. I’ve just bought some cotton gloves so that I don’t look quite so odd! I was having to wear woolly gloves when walking my dogs. I’m sorry to hear that you are still suffering with your feet after all that time. As I’ve only had one infusion, I’m expecting things to get worse for me, but hoping to be proven wrong. 

  • Hello Jools I'm also doing oxaliplatin (cycle 4/6) - aren't we so lucky to be having the treatment during the summer! Idk how I would have coped with cold winds, cold water, everything chillier. My infusions are every two weeks and I find the pins&needles settle in the later part of the cycle. Also getting some face effects (eye cheek and lip cramps) when walking outside.

    Bit of an odd look to be wearing gloves when digging in the fridge but gotta love it Rofl I got myself a thin leather pair as I find it's insulating without being hot, I also prefer the touch feel of the leather than the knitted gloves, much better grip. May need to do cotton&washing up combo for the wet jobs though, looking for lined ones but hard to source.

  • It’s lovely to hear from someone else going through the same treatment. We’re becoming quite the team! You’re right about being lucky to be having it during the warmer months. I’ve had the face cramping too! The first time I was quite worried, but once I realised it was a temperature thing, I tried to take more care. I don’t like the sensation of feeling like someone is ramming pencils up my nose. Another problem with temperature changes. I found a pair of washing up gloves that are cotton lined. I’ve only used them once, to wash fruit, and they seemed pretty good. They were from Lidl. I have been suffering with upset stomach for the last 3 days. I’ve taken loperamide, which worked, but then suffer with really painful wind. I’m only 1/4, so hope I get better at managing the side effects. Take care of yourself, and do keep us updated as and when you feel like it. X