Neratinib

  • 2 replies
  • 8 subscribers
  • 686 views

Hi has anyone else been or on this drug? I start tomorrow and wondering how everyone is feeling plus side effects please xx

    1. Hi, I've done 3 weeks on a half a dose. My onco is allowing  me to build up to the full dose in the hope my body adjusts to it. I've experienced  bloating, cramping and also lose stools. I'm  definitely  more tired too. I've  been feeling anxious as well which is new for me. Nevertheless  I'm still well enough to keep working. I was perscribed lopermide  with it but I stopped  taking that quickly as I just got bunged up. 
    2. Good luck with your treatment. I hope it's  kind to you. 
  • Hi Catriona1 thank you for your reply. I’ve started on the full dose today and I’m playing the waiting game to see what happens next. 
    move read a lot about the loperamide so I’ll beat that in mind. 
    Good luck with your treatment too xx