Adrenal Carcinoma ???

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Hi all 

I am hoping I'm allowed to message in this group

My partner has a very rare form of cancer - Adrenocorticol carcinoma - and I don't know who to turn too for some advise - is anyone else dealing with this type? it has now spread to the stomach and liver.

Thanks

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read that your partner has been diagnosed with adrenocortical carcinoma and I know what a difficult time this will be for you both.

    As you know, the online community is divided up into different support groups so I hope you don't mind me recommending that you join the neuroendocrine cancer group where you can ask questions, share experiences and get support from others who have had a similar diagnosis. 

    To join, just click on the link I've provided which will take you directly to the group. You can then join and start a new post in the same way as you did here and join in with exiting conversations by clicking on 'reply.

    When you feel up to it, it would be great if you could pop something about your partner's diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    This link will take you to a blog which explains how to get the best out of the online community but if you have any difficulty navigating the community just drop me a reply and I'll be pleased to help

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hello there

    Thanks for putting me in the right direction.

    Many thanks 

  • No problem :)

    There are quite a few people in the group who have mentioned having adrenocorticol carcinoma so I hope you're able to connect with them.

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"