Waiting for the side effects

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Good evening

My chemo regime is 6 cycles  carboplatin and paclitaxel once every 3 weeks , the infusion is about 8 hours from bloods to last port flush.

I've only just had my second cycle. The first cycle was ok , I had cramping tummy , gripes and s few days where I felt very hung over , minus the party.

This cycle , which I had 6 days ago has been fairly mild again, I've in fact felt a bit of a fraud and am just wondering when the side effects will kick in. I have started getting numb toes, my stomach has gone into spasm and my bowels are loose, but if I take the prescribed meds it sorts me out.

I'm just wondering , will I suddenly get ill , when will the worst hit , is it working ?? Are the symptoms lurking around the corner ?) My consultant said many of his women sail through chemo compared to the operation (ovarian cancer)

  • Hi . Maybe not the right person to answer. Firstly, I am male.  Also, I had cisplatin rather than carboplatin, but I believe both drugs are similar. I know what you mean about anticipating what may happen. I was always expecting some nasty side effects but in reality, nothing bad happened. A few queasy days and a bit of numbness in the toes, but nothing that wiped me out and I carried on as normal. After the treatment, I had bouts of fatigue for a while, but that faded. We know these platinum based drugs can affect your hearing, so let your team know if you notice any change. I had mild tinnitus for a while, but again that passed. One tip I was given by my oncologist, these drugs can cause mouth sores and I was advised to rinse with a good quality mouth wash several times a day to prevent these. Seemed to work for me. I hope all goes well for you and you do sail through it. Best wishes.

    Best wishes to All,   rily.

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  • Hi Rily , thank you for your support and reply . It's reassuring to hear your story, I just feel my cycles are bit like Russian roulette. 

    I have been asked to use mouth wash but actually forgot, so thank you for the reminder.

    I have been told it gets accumulative , but am hoping I also sail through it as the operation and recovery were pretty brutal.

    All the best for your tips and info on your experience.

    A