First of all congratulations for completing your chemotherapy regime. I had nearly 7 years ago and my weight went down to 7 stone. I believe it is normal. But have a word with either your nurse or oncologist.
I hope everything is going well for you.
I am awaiting a MRI scan and I get the results on Wednesday and I am very worried. I had a CT scan in April and I was told I had radiation enteritis, however a second radiologist checked the scan and found a shadow. Apparently the hospital wrote me and I apparently cancelled the appointment, which is not true and the gynae doctor didn’t believe me. I am thinking all sorts and if it is “ominous”, I am worrying if it has gotten to big or may have spread. I am terrified
On Tuesday past I was feeling very poorly. I felt nauseous and I felt very light headed, my nose was bleeding and I felt very weak and very tired but could not sleep and had diarrhea.
I phoned the place where I am getting my chemo so they told me to come in. Bloods were taken and a X ray of my small bowel was taken. The bloods were okay and the X ray showed my small bowel was not blocked as I was worried it was. They gave me cream to put up my nose as apparently chemo can give you scabs on your nostrils which can bleed. I was also given codeine tablets to take with lopermide tablets to stop diaharraha. It did stop on Wednesday but now today it has came back. At times I wish they had admitted me to the ward for further observation.
Today I am also very tired and sleepy but can not sleep. Maybe the codeine tablets I took yesterday have made me sleepy today.
I also got a CT scan last Friday and I am awaiting on the results. I am also like yourself very worried what it will show and what my next treatment may be.
You must have been very weak when you were down to 7 stone!!
I am just over 8 stone now. My normal weight is around 9 stone as I have suffered from Crohn's disease since 1992. I went down to 7.5 stone in 1992.:
I pray that your scan will bring you good results.
Thank you for your reply and sorry you are feeling poorly. I guess chemotherapy does make you better but going through it is something I wouldn’t wish anyone. When I had chemotherapy (7 years ago) I don’t remember much of it because I had sepsis and I was put into a coma. It has left me with pins and needles in my toes which I don’t notice too much. However, the chemotherapy did shrink the tumour and then I had 35 rounds of radiotherapy and 3 lots of brachytherapy. And my weight is now 11 stone 8 pounds, I sound like heifer, ha, ha, ha,
Your weight is very light but don’t worry about that because when you are feeling up to it you can have a nice, big, scrumptious meal with all the trimmings. I am watching “Celebrity Master Chef” at the moment, which is making me hungry. When I had the operations for my colostomy and urostomy my weight went down to the 5 stone bracket and I had to learn to walk again, which was awful because my weight was low and I didn’t have the strength and my knees wouldn’t lock. I have sinced passed my driving test (first time) and I bought a car.
Maybe the diaharia you experiencing could be down to the Chrones? Or maybe it is roundabout feelings and side efrect of chemotherapy.
I hope and pray your CT scan results are great and I hope and pray for myself too. It is horrible. I am having the MRI scan Saturday morning and as I mentioned before I get the results on Wednesday and I have been crying and worrying. I have been to and fro A&E for 2 years with bowel obstructions and I have had 3 CT scans and each time I ask if there is anything “ominous” and each time I was told no and it’s scar tissue. On the CT scan I had in April the radiologist signed off the CT scan as fine but a second radiologist found a shadow and apparently the hospital wrote to me and apparently I rang them up cancelled, which I didn’t but the gynae doctor I saw on Friday didn’t believe me. I am worrying if it is “ominous” how big is? Or has it spread?. I will let you know how I get on.
I am just checking in with you and I hope you are feeling better and brighter. I have been thinking about you.
I have just come home from the gynae clinic and the bleeding is because my pelvic floor has dropped due to the treatments. I asked the consultant to marry me! Ha, ha, ha.
I got a phone call from the doctor today to say I now have a blood clot in my lung. I am already taking clexane injections to thin my blood to avoid blood clots.
I now tomorrow have to go for more chemo but I also have to stay overnight in hospital to have a scan within two hours of taken injection to see if I am on correct dose of clexane injection. And then on top of this there is Covid to worry about.
Thank you for your reply and I am sorry you have a blood clot on your lung. I had a blood clot in my left thigh when I had major surgery and I treated with Clexane injections. They did try to put me on Warfarin but it constants cinnamon and I makes me feel sick.
I hope your chemotherapy session goes well, if that makes sense and your stay in hospital will brief.
How are you? How was your chemotherapy session? How is the medicine (clexane) with your blood clot? I thought I would let you know I am thinking about you and hope you are okay.
I am still in hospital. I just got another CT scan today to check are these new or old blood clots. Doctor will not let me out till he sees the result of this CT scan.
I am very tired. Still do not sleep well at night especially on hospital beds.
