Chemotherapy and Immunotherapy - Body/Mental Changes

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Evening all,

I hope everyone is well.

I just wondered how members that have been through chemotherapy changed in appearance? If any changes at all.

My Dad has Stage 4 SCLC (small cell lung cancer) also on liver and spine. His Oncologist has said it’s treatable but not curable. He had his first chemotherapy treatment (Carboplatin and Etoposide) also with immunotherapy (Atezolizumab) 10 days ago. Previous to this he had been in hospital for 5 days as his sodium levels were abnormal. And a further 8 days after his treatment. His next treatment date is 17th August, he is having 4 sessions every 3 weeks and continuing on immunotherapy for 2 years.

He is now home, he seems to have some colour back in his face, although looks washed out, but obviously has lost weight, slimmer in the face and a little on his shoulders. He was very distressed in hospital, he had to go in immediately, he had his first cycle of treatment but his liver took a knock and they thought treatment would have to be stopped. Thankfully his liver is now stable enough to continue with treatment, so it has been a very very stressful couple of weeks for him and it’s really taken a toll on him. He doesn’t have a good body clock at the moment either so he’s not sleeping through the night and his brain is ticking over constantly, it’s really given his mental health a knock. He is up and about at home but obviously a little weak and still having naps. 

He has an appetite, which is good, he is eating at home but he just looks thinner now.

I just wondered what body image effects/mental effects treatment and the journey had on others? Did your skin colour change?

Thank you

Lucie x 

  • Hi Lucie

    From my personal experience of chemotherapy, my body changed. Mentally my views changed and I had lots of "mind custard" or chemo brain which go after the treatment stops or reduces during the recovery period between cycles. The amount of change to both will be on a person-by-person basis.

    I do recall from the chemotherapy cycles though my bodily change was shocking. Almost as if I had gone through a mid-life crisis in a few days- belly, poor skin followed by hair loss, nail bands, etc. The weight-loss which happened everywhere expect this new-found belly also followed after.

    The key for me was eating what I enjoy. Little and often too. A standard sized meal little three times a day no longer worked for me. This was especially true when I went on POMB after which I got hungry every 30 minutes which included at night. 

    I did have a pause during my treatment due to some other medical complications which have passed now. But I did notice during this pause was the body did start to return to normal- skin, disappearance of belly, hair grown- albeit more like soft fur. It reassuring to know this was purely chemotherapy and not a sign of a future that awaits.

    Again this is my personal experience and hopefully you dad experiences the same return to himself or better after. Hope this helps.