PICc line question

Hi Gwenniepennie

I mentioned this to my Husband, he said although he did not feel any discomfort radiating up to his throat, he did feel some discomfort in so much as he could feel the picc line across his chest for a few days. Consciously he could feel it until he go used to having the alien insertion.

I hope that you can get some other information from specialists as it is best to get this checked out

Good Luck

Lowe'

Thanks Lowedal.  I had an X-ray yesterday and they have decided my PICC line is a bit high in my chest, it was 40cm, so am having it removed by guided wire and a longer one inserted next week.  Still having chemo today as it will do the job.  It sort of feels like constant heartburn and is okay if I am busy but at the end of the day is just too uncomfortable.  Onwards and upwards!

I am so glad that they found the reason for your discomfort Gwenniepennie

Hope the chemo has gone well and not taken too much out of you.. positive thinking, and as you say, onwards and upwards.

Best wishes

Lowe'

Good morning Lowedal I am in Hospital on IV antibiotics after a pretty hard week.  Not the best start and not the time to make decisions but all my fears are heightened.  I feel much much better but already dread  the second dose of chemo and am really hoping that I get an extra week delay in its delivery,  I have an Oncology consult today so let’s hope this is just a really bad one off and that the rest goes okay.   I have no experience of being ill ever and am really not sure that it suits me or that I even have the capacity to deal with It.  Gwennie

Hi Gwennie

Sorry for my delay in responding to you, it was my Anniversary this week so Hubby and I have been spending some time together

So sorry to hear you were in hospital, are you home now?

Possibly the first dose chemo reaction was down to it being the first dose, the body needs time to adapt to the treatment, and this must be made worse still by your overall wellbeing up till now.

Gwennie is it possible for you to try self visualisation? My husband imagines the treatment as a sweet medicine, a lifeline, coursing through his veins, he imagines himself well, imagines the cancer shrinking, focuses as positively as he can, and although there are some not so good days, overall it seems to work for him... Maybe, just maybe, it might work for you too.

Stay strong and keep me posted, 

Thinking of you x

Lowe'

YWow Lowedal what an interesting way to look at this.  No worries about the delay in replying and yes I am home now.  Two days of Meropenen and I feel oh so much better.  The likely cause was a UTI.  I sort of started to make decisions whilst I was feeling low and realise that it was the wrong time to make any decision.  I have my week off and my Oncology consult delayed til next Wednesday to give me time to ensure I recover properly and am able to see clearer.  I am going to have the same dose I have decided if they think this is okay, as I don’t relish the alternative of a lower dose over a longer period.  I am sure my second week was not so much the side effect of the chemo but more my bodies inability to deal with, or it’s lack of ability to fight.  I sort of see it like some women sailing through pregnancy and others feeling sick the whole way through.  Each body reacts differently and mine just thought sod this!

i am going to have a go at your husbands positive feelings and am also considering some meditation and relaxation to focus myself better.  Whilst in hospital one of the nurses suggested Gaia available through Prime, to help with relaxation classes as I really did struggle with all aspects of being unwell.  I was last ill over ten years ago with a UTI, which I thought was flu so went days without help, very like this last week.

Thank you so much for replying.  I find this very helpful and did feel a little isolated and unsure how long or what I should experience over those first weeks, although I know the headache and the bad stomach were the prime candidates.   I sort of thought after I had the first treatment that my BCN would check in and did not want to bother them if they had more seriously Ill patients to deal with.  Lesson learnt.

Lowe I will keep in touch