Eribulin

Hi and welcome to the online community

Whilst I don't have any experience with Eribulin I noticed that your post had gone unanswered. I tried typing it in the search bar near the top of the page but didn't find any recent posts talking about this type of chemo.

You could try posting your question in ask a nurse where one of the specialist nurses will aim to get back to you within 2 working days, or call the Macmillan Support Line on 0808 808 0000. It's free to call, staffed by trained experts and available between 9am and 8pm Monday to Friday.

All the best for your upcoming treatment

x

- You'll have started by now, so hope the first dose went well. I have no experience yet, but start Eribulin on Tuesday - any words of wisdom appreciated!!! 

It's soooo much better than EC, paclitaxol and abraxane! If you've had any of those already then you will be fine. xxx

I hope all goes well on Tuesday. Let me know how you get on. I have another one on Wednesday then I'm on my week off so I'm curious to see how the second one goes. Xx

I've had FEC and abraxane (I was allergic to the docetaxol). Interesting that you've had Abraxane as I've not spoken to many people who've had it! 

Hurrah! I just want to get on with it now as this is last chance saloon for me, so hope it works!!! 

Good luck for Wednesday

Hello

How are you getting on with Abraxane ?. When i last posted on the site in May, l couldn find anyone that had posted on this Chemo.

I have had 5 sessions of Abraxane and due to have 6th but this is being delayed due to pins in needles in Feet and Finger which  started after a couple of sessions and had the dose reduced 20%.  I am feeling good otherwise on this chemo than being on Vinorelbine and Epirubicin which didn't work and sent my  CA 153 to 98 but now is down to 21 on Abraxane

Best Regards

I'm on a different one now. Abraxane didn't work for me so now I'm on erubilin. I was the same with tingly finger tips. It drove me mad. Lol. I also had really bad shooting nerve pains down my leg s with abraxane.

Hello

Thanks for your response. Have the tingly finger tip stopped now you are on Erubilin

 Do you have any side effects from Erubilin.?

I had quite marked peripheral neuropathy when I was on Abraxane and I had to have the dose reduced to stop it worsening. It troubled me for quite a while when the course was finished. It gradually improved but I was left with some nerve pain in my feet (like a burning pain), for which I take a low dose of Nortryptaline. 

I'm now on Eribulin as a last chance saloon chemo. I thought I was getting away easily to start with - just some heartburn and vague stomach pain (mind you, I take antisickness tablets as a precaution as I don't do nausea and sickness!) and slightly numb fingertips.  However, after 7 days and preparing for the day 8 dose, my bloods showed that it had trashed my neutrophils completely - they were less than 0.1, and I spent 9 days in isolation in hospital, where I also had a PE. 

Oh, and on Day 8 my hair fell out - apparently some people don't lose any hair on Erubulin whilst others do!! 

On the second cycle, the oncologist reduced the dose by 25% and again, I got away with some heartburn but felt very optimistic. Bloods were okay for the day 8 dose, but then four days after that, my neutrophils disappeared again and I was back in hospital for five days! I then picked up a chest infection and had to have yet more antibiotics. 

The oncologist has now delayed the next cycle as he said last week that if he'd have allowed me to have it then, it would probably have killed me! (cheerful) Now have to wait until after my next staging CT to see if the three doses I have had have made any difference to the cancer. If not, he's going to take me off it as the severe neutropenia and hospitalisations won't be worth it given that I'm on a limited time prognosis anyway! I'm hoping that there has been some positive change so we can have at least one more go at a further reduced dose...

I've never had ANY problems with my bloods before during any of my chemos, so the severe neutropenia is obviously my 'thing' on Eribulin. 

Hope some of that helps...

Hello  Weeblemum

How are you doing ?.

Are you still on Eribulin ?.  And did did it work on the cancer.

Like you l am on my 2nd round of Eribulin and my temperature is more down than high.

Had a few tummy pains and  diarrhoea a couple of days, really unwell at weekend although didn't call the Hotline as l should have.

Feeling better today and will see the Nurse tomorrow at the Hospital for next dose on Wednesday.  Have tingling in fingers again on this chemo.  Not lost my hair but a little came out on a comb yesterday.  My hair came back curly after losing it on Abraxane.

Look forward to hearing from you

Pam.