Change in treatment

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Well oncology appointment yesterday. They are stopping immunotherapy treatment and as of next week starting chemotherapy. They say immunotherapy isn't working now and the big tumor in his bowel is growing and that's causing the obstructions. Despite being told everything is stable and no growth for the last 3 scans. And being told at diagnosis that chemo wouldnt work on his cancer due to genetic anomaly so 2 years down the line let's try chemotherapy  I really don't know what to think.  

  • It’s difficult . Immunotherapy hasn’t worked for my  wife’s  stage 4 endometrial cancer- the areas of cancer in her lungs have grown but in her case they are going to change the  immunotherapy drug. I can only suggest that you try to speak to someone in his  team to get more information 

  • We spoke with the team foe hours yesterday.  All they pushing is chemo and keep telling us things have changed. Rhwy have told us to apply for pip and will now sign sr1 form so despite say we don't want prognosis we basically have one 

  • Life can certainly feel hard and cruel and doesn’t prepare you for dealing with all that comes with a diagnosis of cancer. When my wife was first diagnosed we did ask for a prognosis which came as a rather startling 9-12 months without treatment and 2-3, possibly 5 or more years with treatment . I am thinking that with this change in treatment we will have to ask again and then plan for the worst while hoping for the best and making the most of life together - cherishing every day that I have with her 

  • We have also just been given a change of treatment.  Stopping folfox and pani and changing to capi in pill form.  Apparently after 9 cycles of folfox, we are on diminishing returns and the side effects sometimes outweigh any good.  I am putting my trust in his oncologist, after all she is the professional.