Equipment advice please

Hiya. Didnt want to read and run. So sorry you are going through this.

You shoukd be able to get a bed and maybe air mattress from medequip, are you in UK? 

The doctor or district nurses should arrange this. If not, is there a hospice you can connect in with, ours were great when my husband was terminally ill, and got things in place like the bed very quickly.

Some you can refer yourself, worth a check. 

Hope you get what you need

Thanks. There is a hospice not too far away. Maybe I’ll pop in x

Your nearest hospice may have a specialist palliative care team Give the main number a call and see what options there are for help

A specialist palliative care team occupational therapist would be able to help your husband get a medical, air flow mattress and bed, or recommend and refer him to the appropriate service to get a bed. You could phone your district nurses/community nurses and ask for a palliative assessment. Your GP is the lead medical practitioner for anyone in the community. Contact your surgery and explain what is happening and that your husband needs more help to manage his pain and anxiety. Don’t wait for a month to get a MacMillan nurse, this will happen in due course but in the meantime you and your husband need help and support now. Call the GP, ask for a referral to the hospice, call the specialist palliative care team on the hospice number and the district nurses tomorrow. I call everyone whenever my husband is suffering, I make a fuss, always politely, I stress how his mental health is being affected and emphasis the pain needing to to managed. It is unfortunate but these days we have to keep on at the services to get the help our loved ones need and deserve. 

Thanks for your reply.  I tried calling the occupation therapy team on the number given me by MacMillan but they said they can’t do anything without a gp referral- so dead end there until we speak to the gp. I’m planning to go to the hospice next week. See if I have more luck in person. It shouldn’t be this difficult.