Need some advice

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How do you all cope with watching your loved one struggling with everything. I'm trying to stay strong but every day is like ground hog day. Its exhausting, my head is all over the place. All I want to do is cry. I want to focus on the here and now but my mind keeps wandering to what life will be like after. I feel like I'm grieving already. I'm just so sad for us both. I go out for walks when my daughter comes to sit with him but this makes me feel sad that he's not able to and guilty that I can. The worst is the uncertainty of not knowing how long this will go on for. 

  • Hi  

    That "trying to stay strong" bit - I just wish it was as easy to do as it was to type. The sense of anticipatory grief is very common and there was quite a good piece on that here. 

    Janice never wanted a prognosis and I really struggled with that, having been here for a while however it seems that they are often little more than an educated guess and based on historic data that may be less relevant. 

    <<hugs>>

    Steve

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  • Thank you for your reply. It's such an uncertain time. Easy for people to say take a day at a time,  make time for yourself. How, when you're not physically caring for them you are worrying if they're ok. Graeme had his brain surgery in Jan, prognosis not great. Lots of complications and has only just completed radiotherapy. Just have to play the waiting game now. Its very hard. 

    • Take care