Really struggling with watching my husband deteriorate in front of my eyes. I have loads of support but nothing can prepare you for this. My heart is breaking.
Hi Bailey. Im sorry you are going through this, it is horrid, like a kind of slow torture. This time last year I was jyst watching my husband slowly, then quickly decline piece by piece until he died in October.
There is nothing you can do, I dont think, to prepare emotionally. Yes you can prepare paperwork passwords, bank accounts etc which will all make things easier, but your heart just breaks.
Just use the support as much as you can, spend as much time together as you are able to, talk, cry, do whatever you need. Sometimes you can access counselling which can help, I never got that opportunity but others do. Try to have something for you when you can, for me it was choir, but anything you enjoy helps.
Do chat here too, everyone is very kind and lots of us have either been there or are stil there.
Thank you so much, I really appreciate you sharing. What has made everything worse is the stress of everything caused me to have a minor stroke. It never rains but it poors. To be honest I'm not sure how I feel at the moment, angry sad, frustrated, lonely. Because the radiotherapy was on his brain, he gets mentally fatigued as well as physically, so not a lot of conversation happens, but he enjoys his music which we can listen to together. Every day is precious.
I find the his fatigue really hard. He has gone from the strong one in the marriage to permanently tired (when at home with me but not when he is out with his mates) and not wanting to do much with me at all. I am aware of my shortfalls and am building up a group of people I can trust to help with cleaning, house maintenance etc. Keep safe. I hope things get better for all of us.
