Leptomeningeal disease diagnosed in my 47 year old partner.

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New to this and just reaching out for any support, advice or help from anyone who might understand. My partner had breast cancer in 2022, mastectomy, 14 lymph nodes removed. Radiotherapy, chemotherapy and ongoing drug treatment. Her reconstruction finally happened in September 2025, which was a successful operation but almost immediately afterwards she struggled with chronic back pain. After months of being passed around the system her oncologist finally requested MRI spine at end of January 2026. Found metastasis in her spine in two places including high up in the neck, also pelvis and femurs. Radiotherapy was done followed by chemo on a weekly basis. Shes had numerous hospital stays for infection and sepsis once since. Started with sickness and headaches about 6 weeks ago, culminating in another hospital stay this week. Yesterday they did an MRI on her head and found cancer in her brain, listed as extensive leptomeningeal disease.

We have been fighting this for what seems like a long time and to get this news now is utterly devastating. I dont know what to expect now, or how to cope with caring for someone going through this. She is being so brave but the fatigue is already massive for her, at least the nausea and vomiting is under control now. Her team are meeting next Tuesday to determine a plan, but I am on pins all the time, terrified of what might happen any minute and feeling completely unequipped to deal with it.