My husband presented at the GP in May due to some neuro symptoms and we quickly found out he had a solitary metastasis in his brain (now removed). Found out the primary cancer is in the colon. He is due for his last of 5 srs treatments today to clean out the brain cavity,and then Friday meeting with the colorectal surgeon to plan surgery.
My husband is relatively physically well. Increasing bowel symptoms but told unlikely to need a stoma.
Im on here to try and speak to others about me coping.
He is very negative on the whole, and talks about there being no hope as it spread already to his brain (but oddly nowhere else). Not being able to drive for 2 years is depressing him greatly. He doesn't want to be dependent on me for going to the shop etc or appointments but doesn't want to take public transport. He said he'd feel more independent if he got patient transport to appointments but wants me to go in with him. But not talk.
He doesn't share any symptoms or feelings unless probed. For example if he is horrible to me and I react to it he might talk to me a few hours or days later. Then I can say ' you were up a lot last night ' for example, or I'm glad you are telling me how you are feeling.
He has no interest in counselling or talking.
I'm signed off work currently but due back mid August. He's a full time carer to our adult daughter, and supports his elderly mum a lot.
I would love to give up work I think or go part time (I'm 60 in December) . But don't know what to do. I don't know if he's going to recover after surgery fully? If the cancer will spread, they've currently said no systemic treatment likely after surgery but the radiotherapy consultant said ' well its only a matter of time, the cancer spread once, you'll get it again '
I feel confused and am sticking my head in the sand
I really envy the glass half full people. I have always been half empty. I am now on week three of six of a 'Living Well with a Long Term Health Condition Managing Worry'. Online Course. This was prescribed by the doctor after I gave in and approached them. Am not sure if it is helping yet, but at least I am trying.
It's hard, our lives are definitely being affected. There is nothing I.can do about it though. So, must just 'pull up my socks' and soldier on. Keep safe and know, if you have no-one else (like me).this forum is here and we all understand.
Hi FiveO
Life would be very boring if we were all the same and the fact that you have reached out for help, I think, makes you very brave, the downside to being positive is that I never ask for help and sometimes life would be much easier if I did.
I never thought I would ever be in the position I’m in today, but you’re right we are where we are and all we can do is put our best foot forward and keep going. Some days I feel like I’m walking in treacle but we will get there and I’m sure have brighter times.
It’s hard isn’t it. I too never thought I’d be in this position. It’s totally changed everything. I lead a small life which I’m content with, my partner, who had surgery to remove a brain tumour, is the exact opposite, loads of friends and a very positive outlook. Since his chemotherapy and radiotherapy course of treatment ended last week, I’ve been completely devastated, totally unable to cope. The oncology nurse said it was normal as everything had been ‘full on’ but now we’re waiting to see the consultant on 7 September, so we’re in limbo. I just don’t seem to be able to control my emotions. I’m selfish, talking about myself when it’s my partner who is ill, but this is the only place I can share what I’m feeling openly.
Maureen you are absolutely not selfish. Like me you are scared about the future, I would swap with my husband in a heartbeat, but things don’t work that way. I’m 55 and my husband is 58, the thought of our silver years being cut short fills me with dread. And I have to keep telling myself this is a blip on life’s canvas and we will get those silver years and probably value them more. He’s surgery is tomorrow and I will probably relax in a couple of weeks till then I’m operating on high alert
Whatever cancer throws your way, we’re right there with you.
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