Hi, I am in need of a hug. My husband is in hospital being treated for an infection. He has metastatic prostate cancer that has spread to his bones spinal cord, causing spinal cord compression. He has a serious case of lymphoma which has led to fluid build up in his body.. he has been in hospital for almost two weeks now. One day he responds well to the antibiotics and the next he doesn’t. He has been in a lot of pain. The doctors eventually referred him to the palliative care specialist who are managing his pain with oxycodone. Doctors are taking it day by day at the moment. They are saying the prognosis is guarded? My husband initially said he would like to come home to die. The hospital bed he has at home is too small for him and uncomfortable. We live in a flat so don’t have much space. I can’t clear stuff out because I don’t know what of all the stuff we have in every room, we will need if he does make it home. The flat looks like a storage facility for a physiotherapy department and a medical ward.
Doctors have told me that my husband will need palliative nursing care if/when he comes home. I can’t imagine we have the room for that. I would have to sleep on the sofa if he needs 24/7 care.
after a year of having him at home, caring for him throughout the night and with carers in the day time, I don’t know if I or he would cope at home now this have become so much more uncomfortable and painful for him. Confused, exhausted and overwrought.
