Rollercoaster of a day

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I arrived at the hospital this afternoon to be told that my husband may have only a few days to live, followed by a physiotherapist arriving at the bedside to tell me that they were starting physio tomorrow, the plan being to get my husband to be able to stand using the rotunda. The physios plan to see if he is able to sit up on the bed and then stand.

I got upset with the physios and explained that my husband is in so much pain that he cannot even sit up straight in bed so how do they think he can stand? I asked to speak to the doctor in charge who came to see me and said that they have to take the opportunity of getting the physios while they can. This does not mean that my husband is expected to stand up, in fact the doctors are monitoring his response to treatment and are deciding for how long they should continue to treat him. It may be that after a couple of more days they decide to stop for three weeks and just let things take its natural course. If this is the case they will just want to make him comfortable. It is so confusing for me to understand that one minute they say he is at the end of his life and the next they are offering physio in the hope of you being able to stand and come home and then when questioned they may decide to stop all treatment because it is not working and while they can only offer I guarded prognosis.. 

my husband told the doctor that he has had enough f waking up every morning in pain. He said he is ready to die. The doctor stroked his hand and smiled at me. 

I don’t know what to do, say or to  feel . I am so confused and worried nothing is making sense to me right now. 

  • Hi teatowel, this time is so hard. It does seem odd that they are thinking physio yet also saying he only has days. My husbands treatment was all stopped about 6 weeks before he died and it was just making him as comfortable as possible and helping him do what he could, which got less and less each day. Its such an horiific time, you mind and emotions will be all over the place and you will be thinking about his pain now and also life without him.

    I hope tomorrow brings some clarity for you in understanding, is it end of lufe now.

    Many hugs for you as you navigate this truly awaful phase. X

  • I was told my hubby only had days to live after hospital stopped treating him..They didnt even do basic obs... but he actually lasted a couple of weeks. A few days before he died he actually managed to give himself a shave sat on a chair with a pillow on it as he was just skin & bone.  I definately think he hung on until he got a bed in our local hospice as he didnt want to die in the hellhole of the hospital.