Hi all. I've moved in with my Mum who is Terminal. The doctor has said she has weeks rather than months. Night times are particularly bad. Although I try to get her to sleep with her head raised she always lowers her bed and then starts to struggle with breathing in the early hours. I then give her oramorph to help with her breathing. Some times it helps sometimes it doesn't. I'm sleeping with my door open in case she needs me but it means I'm managing a couple of hours at a time. If that. How do others cope with lack of sleep?
The Marie curie nurse is coming tonight from 10-7! Mums not too keen but I'm ecstatic!
Im so pleased you have that. I didnt get it evety night but when I did I got to sleep in a bed, so much diffetence to me. I hope you sleep x
So pleased for you - hope you sleep well.
Meanwhile, the care package allowed me to finally go home for two nights … though I’ve driven back to be with Mum just now. It felt like a mini holiday, I must admit.
Great news too, respite is so important. Hope you get more.
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