Hi all l am new to this group looking for somewhere to if load as l am really struggling. My husband was diagnosed with COVID in 2020 was on a ventilator for 18 days but luckily he came of it & came home after 31 days in hospital. Then 6mths later rushed to hospital with DVT.
Next step October 20221 diagnosed with oesophageal cancer. Had 4 chemo followed by 8hour surgery removing 3/4 of his stomach & the tumour. Then chemo again but could only manage 2 out of the 4 hospital were okay as it was a preventative. We are still struggling with everything he has gone from 16stone to 8 1/2 & can't gain any weight despite all the neutrician drinks & sachets provided. He had a feeding line in 2024 for 6 maths which didn't really help he gain 8lb it kept coming loose with the stitches so was eventually taken out. We are now waiting for another feeding line to be put in again this week! This time it will be in the nose & not the stomach.
I feel l have been his carer not his wife now for 5years. I don't get any support or a break trying to sort out foods he can eat like feeding a baby every 2 hours! He doesn't sleep great either as he has no fat or muscle on his body! I have bought so many different things to try to make bed more comfortable mattress topper putting a folded duvet for him to lie on as his ribs protrude so much he finds it so painful. He is in constant pain 24hours nothing relieves it pain clinic medication doesn't help. He has had so many tests at the hospital they say he is cancer free but the bacteria & issues with his stomach & back pain is constantly there no relief.
He has also now been diagnosed with COPD to add to everything else
Sorry to rant but l was looking for support somewhere to off load. 
