Sclc guilt

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Hi all, newbie here, 

My mum was diagnosed with sclc extensive stage nearly 5 weeks ago, she had 1 round of chemo and has since declined anymore as she chose quality of life over chemo, since her diagnosis i have moved in with her to care and support her, her onlocoligist has only given her a few weeks to live, as I haven't seen my partner for over a month I was hoping to go home and see her for a few days just for a bit of respite as I feel emotionally and physically  its taking its toll on me, im hardly sleeping and eating and I think I'm suffering with carers burn out but the guilt of leaving her for a few days is destroying me incase anything happens to her and I'm not here to say my final goodbyes. Any advice please? Thankyou in advance 

  • Hi Leon, caring is exhausting. I slept on the settee during my husbands last few weeks when he could no longer manage stairs, and I was scared to go out jyst in case. I was his sole carer.

    Do you have any hospice support at all?  If not, is there one you can connect with? They may be able to give you respite by taking her in for a couple of days. My husband wanted to die at home and he was able to, but he also knew the toll it had on me and would have gone into the hospice if it was necessary. 

    Are you far away if you went home? Is there any other family? Could your partner come to you and stay for a weekend? 

    Have you had a carer assessment from your local council. Sadly by the time mine came through, he was already gone. 

    I hope you find a way. Keep talking here, it helps.

  • Hi and thankyou for your reply im so sorry to hear about the loss of your husband, we only have a district nurse and he's only been out once to do an assessment and said he would be back this week but has so far not turned up I am her only family member and I live over an hours drive away, my partner cant come here as she works full time and I dont want to burden her with coming here. We have been in touch with hospice and they have arranged for us to look round the hospice next week which has given me a bit of hope. I just know I'm no good to her if I'm burnt out so just wanted to go back home for a few days just to recharge my batteries but I'm sick with worry incase something happens while I'm gone.