My husband was diagnosed with metastatic prostate cancer- bones, lymphatic and spinal cord compression 9 months ago. He is determined to walk again and so far the physiotherapists are going along with his wishes. He is finding it so much harder than he thought it would be to stand, even with the aid of a molift. I can’t lift his legs which puts a strain on me because he wants me to lift them. He has lymphoedema in his legs and they are so heavy. District Nurses are dressing them twice weekly. He has a cough, had it for weeks now but is determined he doesn’t want medical attention for it. I’m exhausted and asked for palliative care review which so far is being ignored. The physio had a chat with him about ‘future planning’ and DNRA but that is it. The GP mentioned a Gold Standard of care following discharge from hospital to care at home. The GP hasn’t offered Plastic level of care let alone a golden level. I am tired of contacting medical and care services for help. I am paying for social care which is ok but it isn’t of benefit to my husband as he need more care and observation than the carers provide and which I can afford to pay for. I really want to do the best for him but need support to manage. His oncologist, now retired, suggested he had 12 to 18 months to end of life. How do I know how to manage his care at this half way point? Iam devastated.
