My husband only received his diagnosis 4 weeks ago - he has lung cancer with brain metastases. We saw the consultant just over a fortnight ago who shared the news that there was no treatment - it was all discovered too late and he does not have long. He was able to walk out of that appointment back to the car.
In the time since that news we have been trying to absorb it but he is going downhil fast. A week ago I had to se a wheelchair to get him around as he cannot walk and now he is unable to stand and has lost use of his right arm/hand and has no bladder control 10 days ago I started to seek help - the consultant had told us people would be in touch, specifically Macmillan team I have been phoning our doctor the community nurses but we are just here on our own. A Community nurse called in on Friday and listed al things we need to have and but their timetable is too long. every day he is getting worse and I am stuck here alone trying to care for him. I have got him into bed now but I cannot attempt to get him out of bed again its not safe. We had ambulance technicians round to get him off the floor on Saturday.
Everyone keeps saying you should have help but no one is actually giving any. I am just sitting by the bed with him - scared he will try and get out again. If I dose for a minute he could be on the floor.
Those of you who have got support from Macmillan how did you do it?
I am leaving another message on the Community Nurses answer phone tonight but I need help not a promised assessment.
Exhausted, frightened and sad here.
Sorry to hear about what your are both going through, many who have managed to access support will have found it can take some time to get things arranged and from what you say that is not really what you need to hear at this time.
I don't know that I really have a answer but perhaps if you ring the helpline they may be able to provide some suggestions - 0808 808 0000 - it is open 8am to 8pm 7 days a week.
Hope you manage to arrange something soon.
<<hugs>>
Steve
