Advanced prostate cancer spread to bone and spinal cord compression

  • 3 replies
  • 33 subscribers
  • 150 views

Good evening,

I am having an awful time. My husband has all these issues with cancer and I am feeling like I have had enough. He is extremely demanding of me and was even before he was diagnosed. Now he has a good reason to demand my attention. Sometimes I feel like I should have taken the advice offered years ago and left him. He has always wanted me to take care of him and in spite of several medical problems he always refused medical treatment until it became critical. This involves me having to make several visits to the emergency department dragging him along. We are six months in to him being diagnosed with cancer and he is more demanding than ever. He has a power chair so he can move with ease from one room to another but he refuses to do so. He expects me to fetch and carry whatever he wants and although we have carers coming in he expects me to do personal care whenever he needs it. This is difficult for e to say but I just want a break from him. I am fed up with doing literally everything and being stuck indoors all day. I miss him being the pain he once was which was tolerable. Now life is rubbish for us both and I can’t help but wonder for how long. I just need to say this to someone and hope you understand. 

  • Hi  

    That does sound realy difficult and I am not suprised at how you feel.

    Have you have a carers assessment? Often as carers something easy to overlook is ourselves and as they say "you cannot pour from an empty cup".

    Something that helped me quite a bit was when my GP prescribed eco-therapy - basically going for a walk but especially if I could do it amoung trees.

    <<hugs>>

    Steve

    Community Champion Badge

  • I can understand how you feel. My hubby was diagnosed with oesophagus cancer in August.He initially came home with a feeding tube which I had to sort out every day & it was a bit of a faff as I had to get a sample of his stomach acid for testing before I could hook up his feed. Sometimes it would take upto 2 hours to get a sample & it had to be 5.5 or below. He was ranting & raging that I was doing something wrong when I wasn't. One night he had a right go at me & I was in tears. I had to go into the kitchen to calm down. When I came back out I told him in no uncertain terms that I'd had enough of his behavior as nothing I could do was right & if I wasn't good enough for him & I was going ring the gp & have him re admitted into hospital. He did apologise but still has his moments. Now 3 months after diagnosis he is now on end of life care in the hospital he hates.We were told a week ago he only had days left but he is still with us & we are waiting for a bed in the local hospice.He is even snappier than he was before but I've learned to bite my tongue. I've told him off for snapping at the nurses as they have a hard enough job as it is.

  • Hi Detty847b62, 

    thank you for taking the time to respond to my post. I  appreciate your kindness at what must be a very difficult time for you. I hope your hubby gets a hospice bed very soon. Take care of yourself and take regular breaks away from the hospital. The hospital will be experienced in caring for people in similar situations to your hubby. Let them take the lead and take a step back. You are not responsible for how he behaves. Sending hugs