No help!

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Hi everyone 

Feeling so fed up and sad for my husband Disappointed  he has stage 4 colon rectal cancer with spread to lungs he was diagnosed August 22. He's not currently on any treatment ct scans are stable have been all year but pain is getting worst! He's experiencing pain in his rectum testicles and stomach oncology just keep saying it's referred pain but why is it getting worst? This past week it's unbearable so I phoned the Rapid response phone number they can't help because he's not on treatment told us to go to AandE hubby refused so left it a couple of days pains getting worst phoned 111 this morning sent us to AandE basically said why are we there and that they cant do anything and it's a 11 hour wait! Took some bloods we waited 3 hours and came home as hubby struggles to sit for 2 long. Phone the Macmillan support number got a couple of numbers for derby oncology rang numerous times rings out! Also popped to our local pharmacy and asked for advice what pain relief he could take over the counter as paracetamol not doing anything codeine causes constipation which he is already experiencing and was told today he can't take ibuprofen which we didn't no. Please can someone give me some advice I feel like no one can help us and gate seeing my husband in so much pain I just don't no what to do?

Thanku

  • Thank you Yvonne, for your good wishes, they are appreciated, and the road can indeed be bumpy, I too cared for my mum, she had lung cancer, and it was a difficult but rewarding time, and I wish you well with your mum, PS my endoscopy was clear. my best wishes to you and your mum.

    Eddie