I am new to this forum. My husband (aged 75) was diagnosed with an aggressive glioblastoma at the end of April 2024. He underwent debulking surgery and was due to start chemo & radiotherapy 7 weeks later. Unfortunately the week before the treatment was due to start he had a number of seizures in A&E as a result of which the treatment was cancelled and he is now in receipt of palliative care only at home. He is now sleeping up to 20 to 22 hours a day although he is still eating and has no pain (something to be thankful for). He can be quite tetchy with me when he is awake which is not usual behavior for him. My children have been amazing and supportive to both my husband and myself but despite this I am left devastated, deeply sad and lonely. I have been very happily married for 48 years and the thought of life without my soulmate in unbearable.
I was told by the consultant at the final oncology appointment, a month ago, that my husband's life expectancy would be months if not weeks. The waiting for the inevitable to happen is unbelievably painful.
I thought it my help to correspond with others who a travelling a similar path.
