After just beginning to regain his strength from a stroke 10 months ago and two major surgeries on his carotid arteries, in January my husband was diagnosed with Inoperable eosophagus cancer. From mild symptoms he now cannot take anything orally and has been fitted with a RIG feeding tube. We are into the fourth week of chemo/ radiotherapy. In the first weeks after the diagnosis I'm afraid I completely went to pieces. Disbelief followed by anger, helplessness, and uncontrolable outbursts of sobbing. Finally I managed to get myself together somewhat, and focus on my husband and how frightened he must be. It's frightening that he has deteriorated so quickly .The daily 70 mile round trips for treatment are not helping him, especially as they are always running at least an hour late which is very distressing for him. Practically I do all I can for him but although he doesn't say , I think he thinks I have turned into a real nag. I worry he's always cold, that he takes all his medications and feeds through the feeding tube. It's just my way of coping, otherwise I feel so helpless. He sleeps most of the day when we are not at the hospital and is very depressed, saying very little. Terrible to say, but I already miss the larger than life husband with a wicked sense of humour and endless practical jokes. I love him to pieces and to see him so frail is breaking my heart.
People say to make the most of each day, and to make memories but when someone can't eat or drink at all and walking is difficult there is really nowhere we can go which doesn't involve either. There is no answer I know. Family say if you need anything, just ask, but there really isn't anything .
Hi, so sorry about your partner. It sounds as if he has been enduring all this for quite some time. My husband has just finished first cycle of Chemotherapy/ radiotherapy so we now have an agonising wait to see if it has had any effect. I'm sure you know the feeling, only too well.
Fortunately we also have a very supportive family but there really isn't much they can do and yes it's relentless and completely draining, But, for now, they are still with us and every day is a blessing. Although my husband may not agree on bad days.
All the very best
Linda
Hi, Well the exact same scenario as my husband. No spread and chemo then surgery then further chemo. Everyone was sounding very positive. Then the surgeon announces that surgery is not an option. The bottom fell out of our world with one sentence. What makes me angry is, if surgery is refused in so many cases why do they still mention it to everyone then snatch it away. My husband is 66 no age these days but it was suggested that his age was a factor in their decision. We haven't discussed anything of Importance yet, to me, to do so would be admitting defeat, some time soon we will have to make a tentative start, not easy for either of us, as you well know My husband finished his chemo radiotherapy last Friday, now an agonising wait for a few weeks before we find out what effect it has had.
In our case the treatment was not as bad as we had been expected, apart from the total exhaustion, but still bad enough. It's going to be a very difficult few weeks for you both and my thoughts will be with you.
Kind regards
Linda
Hi, initially, although I read many posts on this site I was very reluctant to do my own, but surprisingly it is very helpful and I just didn't realise how many people are going through the same thing. You are at the start of a very long and difficult journey, hopefully we will talk again
All the very best.
Linda
Thanks for the reply and So sorry to hear about your partner . Yes I guess that's all we can do. Sending love to you both xx
Hi I'm new here. My husband has been diagnosed with OC but we haven't had the stage confirmed yet since the endoscope ultrasound 2 days ago. He's currently in hospital as he started bleeding from the growth last Saturday but hoping to be discharged today. He saw a doctor yesterday who gave the news that it's spread to the outer lining of the lung but i think he's hiding from me how bad it is. I was visiting today when the gastro doctor came and the words possibly inoperable was mentioned but brushed over.
Sorry I'm in a mess. I can't get a straight answer out of anyone. We now have to wait till next Wednesday for a multi doctor meeting to see the way forward. Reading all the replies on this thread helps. He can eat soup and liquids still so that's something. I'm numb, shocked and in a brain fog.
Hi Mrs slimfast , My partner has OC and he’s incurable too the word is destroying to your soul. He has gone from being peg fed to eating normally , as from now he’s tube fed through the nose. Thankson’t really know much as his mom looks after him ., He become nasty and left me . Saying he doesn’t want me to see him deteriorate. O C has to be the cruelest by far as you can’t even do the basics eating and drinking
I do hope you get the answers you need ! Speak to the specialist nurses they will find out for you xx
Take care xx
Hi GemG - reading your story was like looking in a mirror at my own. I found out also last week that my dad has oesophageal cancer. Unfortunately it has also spread to his lungs, liver, kidney and lymph nodes. I feel like I’ve entered into some awful parallel universe outside of where my old life was. He is currently in hospital as he collapsed in the supermarket, got taken in and then they ran some tests and found out the situ. I’ve been back and forth the hospital most days - I am his only child so there is no one else to share this with, although my friends are being completely amazing.
The thing I’m struggling with at the moment is that no one can tell me how long - will it be weeks, months? The fact it has spread everywhere, he’s lost loads of weight, his face is sunken and eyes are glazed, he’s not eating .. tells me sooner rather than later but then I read stuff/ speak to the docs who seem more optimistic and are saying that a meeting which should happen this week can determine what treatment there will be ie chemo /radio .. to look at I really don’t think he would be able to handle either … :-( .. it’s completely heartbreaking
Oh Binge I'm so sorry, what you have described...you're right is exactly what's happening to us.... my dads face/eyes are sunken too, he's barely eating, other than his meal replacement drinks. He was given the option of some treatment, but they also said it could make him very unwell and possibly wouldnt help so to decide how he'd like to send the time he had left!! Hearing this was so so hard but the rate he's gone down hill, I don't think he would have been able to cope with it. He was given the time scale of weeks rather than months and he's at home with us, which is where he wants to be but I'm heartbroken & so angry that we've not been given just a bit more time to do things together...Im watching my dad disappearing a little more each day and I'm not ready for this, im trying not cry in front of him but my heart is breaking!
Take care of yourself xxxxx
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