My husband was diagnosed with metastatic prostrate cancer in october 2019 which had already spread to his bones. They gave him palliative chemo and radio and a prognosis of 2 years. He had been doing so well but then got spinal compression so was bed bound and then early dec 2021 he fell out of bed and broke his femur. The docs also found he had high calcium levels in his blood. They operated on his leg but I was warned he may not survive the operation but against all the odds he did. The consultant told me he had a very poor prognosis now and they sent him home on 23 dec. Since then we have had carers come in 4 times a day but the last couple of days I have seen a real decline. He is sleeping most of the time and is refusing food but is vomiting. I called a palliative nurse round today to check him over because, to be honest, I thought he was at the end. The palliative nurse told me that he was stable and she couldn’t see any further changes in him since Xmas. I know they are the experts and they know what signs to look for but there have been massive changes in him. He was eating at Xmas, could hold a conversation, would only sleep for short periods throughout the day. He’s not doing any of that now. The palliative nurse even said that he didn’t look like he had lost weight. He HAS lost so much weight his face is almost skeletal and he can hardly speak now. Should I ask for a second opinion? I am hardly sleeping because of the need to keep checking on him. I am so worried about him. My husband is my life
Hi - i am so sorry to read this and in my view you should definitely fight for him i.e ask for a second opinion. You may get the same answers but you might not and if he is not eating but vomiting there is medication that can be given for this. I'm much newer to this journey with my husband than you are - but like you he is my life, and i push all the time when speaking to the doctors to get the truth from them, and also i knew he had a terrible reaction to his first chemo and was refusing food and drink so i made it very clear this wasnt acceptable. He's now admitted and is having IV fluids and soon nutrition of some kind soon to build him up again. Could you call an ambulance and get him admitted to the hospital where he was being treated? I dont know the answer but i feel your pain as i will do anything for my husband. I have noticed on the phone since having fluids his voice is stronger. i dont know if this help at all in any way - does he want to be at home? is a hospice an option even for some respite for you? sorry, just thinking through some options. The other thing if not done already is to ring the macmillan line and ask them for some advice - i have found them to be amazing. Sending love.
Hi CG1107. You know what, you know your husband better than anyone else in the whole world and if you are not happy with what the palliative nurse has said, then call for a doctor to come out and see him. I agree with all the suggestions that Hermes has put forward. Try them all and keep trying until you get some action for him. You've got this, keep fighting.
Hi Hermes. Thank you so much for your reply. I spoke to the palliative nurse on the phone yesterday and she has somewhat gone back on what she originally said and she has told me that my husband is declining now. She has also prescribed anti sickness and other medication for him but it’s too late as I can’t get him to take his meds now as difficulty in swallowing. The NHS have provided a great service to us and can’t complain about anything except the palliative nurse the other day. My husband is at the stage where he is not aware of much now and it’s only a matter of time now. I feel like I am in a living hell at the moment and I feel so isolated and alone - not having much in the way of friend or family support. I hope your husband is ok and receives all the treatment he deserves to prolong his life. Sadly we didn’t get much of that because it had already metastasised to a grade 4 terminal when found
Hi Gazcata. Yes, I know him well. He said he is ready to go now and it’s breaking my heart as I don’t want him to leave me but I so want him to stop suffering now. I know my world is about to collapse.
Can the nurse not arrange for your husband to have his meds intravenously CG1107. And could you ask someone to just sit with him even if it is just for a short period of time. It is so tough and my heart is breaking for you. Just seen your last post and my heart is breaking even more. I know I will be there one day too. Watching someone suffer is the hardest thing ever and like you I don't know how I will cope. Just tell the nurse that they need to get him everything they can make him comfortable and pain free. Thinking of you
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