Hello ... my brother is 58yrs old and was diagnosed with cancer of the lower oesophagus... it has spread to his lymph nodes and his liver, it is stage 4 and they have said that he has about 6mths... he was diagnosed back in August last Yr. and was doing really well at the beginning... He didn't look any different so it was hard to get ur head around at the time....He is single and never married and has no children...
I come from a large family of 10 but most of us don't talk anymore since my mum past in 2019
I am the only one that seams to cares or wants to look after him.... They all no he only has 6mths but not 1 of them has contacted him or me....
I do have 3 children of my own , all grown up now 30,28 19yrs old ... My middle daughter is my full time carer for me as I'm not well myself... She is very helpful and drives me to see my brother as often as she can... She also has 2 children and a husband of her own... So u can see we all have busy life's....
My brother has just spent 3 weeks in hospital again after clapping in his front room.. His hemoglobin was to low due to his tumour bleeding to much.... he had 5 blood transfusions while in hospital but the only way to get the tumour to stop bleeding was to give him one large does of radiotherapy.... He also had a stent put in, in November to help him eat as he is finding it harder and harder to find things that he can eat but they said that the stent has fallen into his stomach so wasn't doing anything and they can't remove it... He is refusing chemotherapy as he says that he can't be ill and live on his own and he doesn't believe in putting chemicals into your body and refuses to put something in his body that will kill good cells as well as bad... He has lost of herbal remedies and thinks that they will do the job just as well as chemotherapy.... I no its good for you to eat the right foods and some herbal remedies do help but how can I sit back and watch him die knowing that chemotherapy could have prolonged his life...
I feel like I'm not here half of the time that it's all just appointment and running around after everyone else... I want to scream and scream but I can't fall apart....I want to help my brother but at the same time I want to scream at him for being ill... I known this doesn't sound normal but I don't no what normal is anymore....
I really feel for you! So hard coping with everything and the fact your brother has the views he does, about chemo must make it so much harder! I get you wanting to scream, it’s a very lonely place . You being unwell yourself is awful , no wonder you feel the way you do
Ps what is normal .
Hi Whitelily. Far from not sounding normal, it actually sounds very normal, well to me at least. You certainly have an awful lot on your plate. It is terrible to watch someone suffer when there are treatments that could at least prolong life, but unfortunately, sometimes we have to respect our loved ones wishes and opinions. Easy for me to say, not so easy to do or live with. I don't think there is anything that anyone can say to make things any better for you. However, scream if you want to, it's perfectly acceptable to vent your anger, frustration and any other feelings that you have. Actually, speaking from experience, it helps a lot sometimes, so do it. You have to take care of yourself at the same time as being constantly in the whirlwind of seemingly being on 24, 7 call and becoming the medical co-ordinator for your brother. Is there someone who can help with his. Maybe he would give you permission to talk to his team to see if there is anything they can do to help. It might help to talk to someone totally independant of your situation. I'm sure if you search around this site a little bit, you will be able to find how to contact the McMillan staff on here. I'm sure they will be able to help you
Dear Whitelily,
I am so very sorry you are having to deal with all of this. I'm sure it's heart breaking to hear his wishes about not wanting Chemo etc. But at least he is clear on what he wants for his future. Hard for you to see, however important these decisions are. Geez, can you get any counselling to help yourself? My daughter and I have both got counsellors now and find it invaluable. My husband who is the person with cancer, doesn't believe in it. Your brother is so lucky to have you!!!
Please don't forget to take even small moments for yourself-
Take care- we're here.
T.
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