My partner had his first chemo treatment on New Year’s Eve, he has advanced bowel cancer with liver mets. he hadn’t looked very good for a few days before but we were both just eager for him to get his chemo hoping he would soon start to feel better. I picked him up on Friday after his chemo and brought him home, his first cycle was done! However he didn’t look great, pale, Clammy and just not right, we went to bed as he wanted to sleep, I took his temp and it was low but he just wanted to go to sleep, I gave him a hot drink and covered him up, he went to sleep albeit a very restless night, in the morning his temp had lowered to 34.4! I rang the rapid response line and was told to bring him back to hospital, leaving him was the hardest thing, how I drove home through my tears I’ll never know. The plan was for IV antibiotics, fluids, scans and X-rays, I was so worried what they would find when they looked again at scans.
Over the past few days his CRP levels in his bloods have improved however the oncologist has been to see him and told him the liver mets has got worse and that they need to put a plan together quickly to deal with this or they will ‘miss the boat’ he was on his own again (he was told the diagnosis of cancer in his own) due to Covid rules, he’s devastated and I’m totally devastated. Everything seems to be happening so quick, he was diagnosed on 17th November and we have been told this today, I can’t seem to function right. I can’t stop crying and im terrified all the time of everything.
my partner is 45, we haven’t had a chance to accept this diagnosis, deal with it, live with it or anything, our world has just been pulled from under us and I don’t know what to do or where to be, I’m lost, broken and sad, I just don’t want him to be scared or upset and I would give my left arm for someone to just give us a pinhole of hope.
Hi Bencin - im sorry to read everything you are going through and am in a very similar situation re recent diagnosis and first round of chemo done. My husband is 52 and ended up in hospital for 8 days for this chemo, athough it was supposed to be 3. like you i certainly feel like world has stopped and i completely understand why you use the words lost, broken and sad as i feel exactly the same. My husband has hardly got out of bed since we got him home a week ago - but I am keeping a good eye on his temperature. Have you used the macmillan help line yet? i highly recommend speaking to someone - they are very good. People ask me "how am I today" and i cant even think in days its more like hour by hour. I'm sorry i'm not offering much help but just wanted you to know that i totally understand all your feeling as i have them too.
xx
Thank you so much for your reply it means a lot to me, I’m so sorry to hear you are going through similar as I often think ‘I wouldn’t want anyone to feel like this’ the sad reality thats not the case. My partner is still in hospital, we are hoping to get him home today 6 days after chemo, he was told yesterday the regions in his liver have worsened and they need to get a plan together or they will have ‘missed the boat’ he was told this on his own and relayed it to me while I was on my own, I feel like we had been told this awful news again for the first time. I know what you mean about people asking how you are, I know there concerns come from a place of love but I never feel any different, I’m just sad and devastated all the time, please don’t think you haven’t helped by replying you have and I truly hope things are as good as they can be for you and your husband.
I haven’t spoke with the Macmillan line yet, to be honest, it’s still all very scary and it frightens me when people say ‘spend as much time together as you can’ or ‘treasure every moment’ I want someone to say ‘it’s ok, he’ll get through the chemo and it will be ok’ even though deep down I know that’s not going to be the case.
xxxx
Hi Bencin
Remember talking is key we had the same news 6 weeks ago
My wife found out 6 weeks she had bowel and liver cancer stage 4 tumors are to big to op on. her first chemotherapy she came home and just slept i did same as you temp and kept taking her water and ice cubes.
this was for the next day too then by the Monday she was managing to have protean shakes as she went off food for days but in the end slowly i got her to eat some scrambled egg and just built up slowly.
her meds have been changed and she's eating better now well something anyway
what am finding is take each day as it comes i know its an same old saying but its true as every day is different. we have a 5 and 6 year old and they are asking all sorts of questions and that's the hard part how much to tell them.
there's guys are brilliant and i have books coming on how to talk to children
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