Bone tumour

Hi and welcome to our community though sorry to hear about what you are going through. Waiting and not knowing are what many find the most difficult parts of any cancer journey.

Sarcoma is a rare form of cancer - my wife having Leiomyosarcoma. We are really used to whenever she mentions it to a locum GP seeing them reach for the computer to look it up.  A real issue of course it that the diagnostic process does take time and then working out what best to do next is another issue.

I have a benign enlarged prostrate so I can sympathise somewhat with your dad too. 

On bone cancer there is a lot of information here and on soft tissue sarcoma here, is can also be useful to look at the sarcoma uk site.

Finally, and perhaps most important of all is we carers need to remember we have to look after ourselves - as they say "you cannot pour from an empty pot" - so glad you found our family to share because is we look at Your feelings when someone has cancer we see just how common the things you talk about really are.

<<hugs>>

Steve

Hi there NW,

My husband has recently been diagnosed with Sarcoma, after a long wait and lots of scans and tests, so I know what you mean about the waiting being so difficult. We tried to take things one day at a time, one appointment at a time. We keep a notepad and pen by the phone, with a list of question we think of which we want to ask at the next appointment. It's a hard time waiting, and once you have a diagnosis, then its waiting in our case to hear what the treatment options are, so more waiting again really, followed then no doubt by some more waiting before things begin. As a naturally impatient person this is tricky, but we are just going with the flow as best we can.

Take care of yourself and your family too.  All the best. 

hi - and welcome. I completely understand, the waiting is terrible and unfortunately it seems to wait for one piece of news and then you have to wait for more. My husband has stage 4 liposarcoma - only discovered by a CT scan. For us things have moved very quickly but that hasnt really given us enough time to process the enormity of what is going on He's already had his first chemo as an inpatient but 3 days turned into 8 days so we didnt even have him at home over xmas. i have realised i am a very good crier - just comes out randomly and i dont even try and bottle it up anymore. something else to consider is asking your husband to sign a letter to your GP stating that he gives permission to have his medical issues discussed with you. I am in the process of doing this now - and at the Marsden where he is being treated, i am registered as his carer so they discuss issues with me aswell.  Hope this helps a little, but waiting is so so hard.