Right from the start 22 months ago we were told my partners cancer was incurable.
He has lung cancer which has spread to the brain and neck.
Chemo,radio and immuno all stopped 2 months ago as the tunours were growing and spreading despite the therapies.
All along the drs won't say how long.i know everyone is different but i cope better with fact.
Ive cope better knowing there is no more treatmemt than i have with lets try this and that approach to shrink tumours and give more time.
What are others experiences and understanding of how long he has now treatment has been stopped.
i appreciate your honesty and know its not cast in stone.
We are trying to live every day but he is sleeping 15 hours a night.
so the day is almost over
Hi MrsGB
oh that's a million dollar question right there! Personally I wish I knew the answer.
My husband was diagnosed in Sept 2020 with a grade 4 brain tumour. The prognosis changed from 18-24 months to 12-18 months to 12-15 months then in March this year we were told "a few short months". My husband declined all further treatment in Jan 2021.
The 15 months are up and now we're in limbo. He doesn't want to know so won't let me ask when we have appointments with the oncologist.
I guess nothing is guaranteed and from what we've heard and I've seen others comment about on here, "a few short months" is the new NHS catch phrase. I think doctors are afraid to commit...or maybe they just don't know. it's not an exact science.
We're just trying to make the most of the time as a family...however long that may be.
I find it harder now to cope as there's no timeframe though. Life feels totally in limbo.
I'm sure others will comment with their thoughts.
Stay strong. Stay safe.
love n hugs
Wee Me xx
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Oh how difficult and I’m so sorry for you. It seems the doctors could best give you an estimate although I know they’re always reluctant as often the prognosis is wildly off. Two friends after no more treatments had very different outcomes. One was told a few months and he died 4 days later. Another was told 4-6 months and he is still going strong 10 months later. I just don’t know- it’s so sad to contemplate but I understand having some knowledge can be helpful in all kinds of ways. Best wishes to you both.
Dear MrsGB
my husband is stage 4 melanoma after finding a mole under his finger nail.
He started on Pembro in December last year, had clear PET scans until September when we found it had spread to lungs, brain and stomach. They started him on two further immunotherapy which he had really bad side effects so they stopped his treatment. It’s now spread further and we’ve been told a few months. we were told a few months in September and didn’t think we’d make Christmas. We’re hopeful we will.
we l feel lucky if we have another day, so my advice as such would be to do that.. grab each and every day as best you can.
I wish you all the very best. My thoughts are with all of the partners/husbands/wives/children and families dealing with this terrible disease. xx
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