Scared of being misunderstood

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Just want to say 'Hello', I've been lurking on this forum since we had our horrible news 2 weeks ago today. It was confirmed that my husband has Hodgkin's Lymphoma, this was after beating non-Hodgkin's Lymphoma in 2011, only this time he's not able to 'dodge the bullet'. His heart wont be able to stand the chemo, although we're hoping he'll be able to tolerate small doses of the chemo drugs to keep us together for some precious time longer.

Obviously our emotions are and have been all over the place. I've read many threads of similar heartache here, and I can feel people's pain. I've wanted to reach out to those who are struggling, but words just can't be formed for me to reply.

I believe there must be more people here who, like me, are listening, but who are a bit like me 'tongue tied'!

At certain times I feel it helps to play games of 'solitaire' on my phone, the game somehow occupies part of my thinking brain, while the other half is calmly mulling over thoughts and filing! 

You're in my thoughts x

  • FormerMember
    FormerMember

    Hi, I totally get you. I'm so sorry you're going through this too.

    What can you say?! I'm struggling to know what to say to my husband, and to other people. I don't mean to sound horrible but I'm so fed up of hearing "if there's anything we can do" there is nothing is there but I totally understand people don't know what to say!

    I play a stupid elf merge game on my phone, it's so boring but it occupies my brain without having to think 'too' much! 

  • Thank you Loobylou! So sorry you're struggling. We don't get to rehearse this.

    There are no words really... but I do feel uncomfortable when I can't answer someone's heartfelt plea. I wanted to reach out with some words of comfort, but words don't appear to cut it, the only words I can think of sound so trite and cold.

    I just feel so useless all round. A song comes to mind, one that my husband often joins in, singing it to me, "You say it best when you say nothing at all!"

    I want to reach out to those suffering, when I haven't been able to reply, you must know that many are silently standing with you.

  • Mum2Rusty

    I wanted to thank you, 

    I am sorry to read of the experience that your husband is undergoing and of course the way this has affected you, but I am more wanting to say thank you, for taking the courage to post, for acknowledging the many many individuals on here who, like you have held themselves in the background ...  sometimes the words we write can be read in a different format to that in which they are written, this is the trouble with remote communication, but first and foremost, communication is key, and you have enabled that, for LoobyLou41, for you, and indeed for me... as well as others who off the back of your post may have taken courage and added their first post also.

    It is a difficult , frightening and unpredictable time for anyone who has need to visit this site, but it is because of people like you, who has their own personal experience going on, but who also reach out as a listening ear to others, that these forums survive. 

    Thank you again... 

    Thinking of you and your husband and if you need a listening ear, we are here for you   "Hello"

    Lowe'

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