How do we cope with constant bad news?

Oh I’m in exactly the same spot today and it’s only been 13 months for us.  I’m completely crushed.  We met with our team today and they looked crushed.  We’re just worn out and it’s hard to pick ourselves up and dust ourselves off to fight another day.  I don’t know how you’ve done it for 3 1/2 years…do you have any tips on how you got this far?  Sending you a big hug.  I suppose we have a well of resilience which hasn’t run dry but definitely needs some topping up before we draw from it again!

It's exhausting isn't it? I don't know how we have done it for this long either, I think you just go from scan to scan or treatment to treatment without looking too far in to the future. 

Did your team give you any hope at all?

I think I am more upset that we didn't have any warning and the hospital just phoned out of the blue to tell my husband his PET scan is booked for today and MRI for Saturday- we haven't had the results from the CT scan yet, all we can get out of the colorectal team is that they have seen something on the CT scan. I was really really hoping we could have a nice Christmas this year, as I was optimistic the latest operation would have put cancer at bay for a bit longer. 

x

Sounds exactly like our experience with my husband’s colerectal cancer. Every time it’s another blow and you steel yourself for what next. Really hope you are able to do something special for your husband’s birthday. 

Read your bio as well and almost sounds like I’m reading my husbands story to a certain extent although ours hasn’t had any good news or all clears at all yet and has only been going on for 16mths. My husband regularly says that he would love one thing to go right. Just one. He currently has two stomas and two nephrostomies as radiation damaged his bladder beyond use. You just think that one day life will give you a break. Just one day. My gran always tells me that we are never given more than we can handle. Not sure I believe it but I try. 

Have to say that it sounds like you are doing and absolutely first class job of managing everything. Sending a hug x

Thank you and I'm sorry that your husbands story is very similar, it's very tough. I think we just going to try and forget about cancer for few days, his last 3 birthdays he has either been having chemotherapy or just been told the cancer had returned and having colonoscopies etc.

Will you husband be able to have a reversal of the stoma? Barri's are here to stay now as they have pretty much removed everything down there.

Your gran maybe right, but do we need to be tested to the limit for this long??  I suppose you will deal with whatever is thrown at you are there is no other choice, the children still need to get up and out to school, everyone need clean clothes and to be fed- there is no option to not cope.

I think i needed to hear that :) thank you xx