Hi all
Mum passed on 21st October, peacefully at home. I was holding her hand and promising her all was, and would be, just as she wanted.
Through this journey I was hoping to provide some enlightenment to help others around prognosis and signs the end was coming.
I don't have that enlightenment except to say about 5 months ago a McMillan Nurse told me that we (me and mum) would know before her (medical professionals) when it was close, she was exactly correct.
Everyone from the McMillan team to the district nurse took our lead on what was going on and how best to treat\medicate based on mum's wishes. Trust me it will not be a burden to make these decisions when the time comes it will be a comfort that they understand and can act accordingly.
You start taking every month as it come, then week, then day and eventually hour. You will know when these change please believe that , and just keep ding the amazing job you are doing in caring. In the end there is a sense of comfort in what you have done.
It is though as hard as you might think it will be when it happens, so when that hits please reach out to people and get support.
Love and best Wishes
