I feel like so alone. And I feel like the biggest bloody fraud for saying that - because it's my partner not me that's going through cancer treatment. I'm not having daily radiotherapy on my tonsil. I'm not having a mammoth blast of chemotherapy every 3 weeks that makes me sick to my core. I'm not the one having my taste buds blasted into oblivion so that everything tastes evil and eating becomes the biggest and baddest of chores. I'm not faced with my own mortality each morning.
But I do feel so alone. My family (mum, dad, sis) are crap at anything to do with emotions or sympathy, and seem more interested in my niece's first birthday party than anything approaching compassion for what we're going through. But they've always been this way, so I don't expect anything useful from them and they haven't disappointed me yet! It's my friends that I'm disappointed with. I'm totally stunned - shocked even - by the coldness and disinterest from people who I thought I could trust to be there for me. People that I've shown up for in the past when they really needed a shoulder to cry on.
There are a few people who really are properly there for us. They've gone beyond expectations to offer support and love. And the most generous support has come from relative strangers - a new client, unknown neighbours, cancer forum users, our letting agent!
I completely appreciate that a lot of people don't know what we're going through, and that no-one wants to even think about the C word if they don't have to - but I just don't understand why they don't even reply to my messages. We've recently moved to a new area and with covid haven't managed to make any local friends in the 6 months before my partner's diagnosis. My friends know that we're alone here.
Every time I reach out, I just want a friend to listen and witness my thoughts and concerns. But when they do bother to reply it's just to sanitise my experience. Telling me to focus on positive things like fun trips abroad (erm, yes we'll get right on that after struggling to get through every hour is a chore!) is just belittling our experience, undermining my genuine feelings. Why can't people let me be messy with my emotions, and stop trying to tidy and fold all my concerns away in the cupboard of repressed thoughts. I'm not going to fake positivity just to make other people feel more comfortable, so I'd rather just cut contact with people who I don't feel I can trust anymore. If you can't feel pain, you can never truly feel joy either.
Sorry, I just needed to rant in a safe space! I'd be interested to hear if anyone else has experienced this. I'm so glad my dog understands me at least! X
Hi there Hopekeepsmiling! I'm so sorry to hear about your partner - I hope you are both doing as well as can be. I find singing really helps when I'm feeling blue - even belting out some Motown in the shower is enough to get me through sometimes! The choir I'm in is just a bunch of old choir friends singing songs we used to do together. But I know there are other online choirs, for example The Sofa Singers is a free weekly online choir. Or if you live in the right area, Tenovus run choirs specifically for those affected by cancer (including carers) and I think some are online?
I do understand ware you are coming from. I have made judgements that it is not worth asking as they won’t help. The worst thing seams to be telling me that’s life. Like you I am care ing for my parer. When I sit in a safe place and howl that I can’t cope and crying, is not much help. Also this community seams to me everyone is having worse then me and should suck it up and stop feeling sorry
or myself. The people that I know who it turns out have the same problems resulting in the worst conclusion. So perhaps we can stick together and rant lots. I have told my Dr that I am struggling sh
has asked a social worker to contact me and they did. I still don’t know what help I need. It seams to go on forever. I used to think the next day will be better then the next week, the next year af
r a bad one seams overwhelming. Hugs & sending Love your way
Hi Weaselbear, thank you so much for your reply I have been feeling so isolated. I do my best to stay optimistic but just feel alone. I will check out the choirs because I love singing! Sending hope & love to you X
Sending lots of warmth and strength to you Hopekeepsmiling! Covid is making this all so much more difficult and stressful. Another organisation I thought about was Carers UK. They have different branches around the country so you can look up your closest online. My local one has groups and activities for carers - so people that are dealing with similar issues and you don't have to feel bad about mentioning the C word! Perhaps your local Carers group have some activities you could join? X
Hello TerryD. I'm so sorry to hear that you're going through the same thing as me. Its really so difficult to keep being the best possible carer for our loved ones when we feel this alone isn't it? Please don't compare yourself to others - whatever you're feeling is completely valid, you shouldn't feel guilty. I suffered with anxiety before this, which I know makes it much harder for me to cope now. Be lovely to yourself - it's something that I'm rubbish at but I'm really trying to improve!
I hope you get the support you need. My anxiety makes it hard for me to make decisions sometimes, so don't worry if you don't understand what you need yet. I've found a local cancer support charity that provides free counselling that I'm going to do in a few weeks, to try and sort through my thoughts and process this trauma - is there anything you could access locally?
This is definitely a safe space for ranting and venting! It's really healthy just to be messy with our emotions, without well meaning people telling us to "stay positive" or "focus on the good"! I sprained my achilles tendon really badly yesterday so can't walk the dog or walk to the pharmacy to get his pain medication. I was feeling so incredibly stressed and down about this as we don't know anyone living within 300 miles of us - but the kindness of complete strangers coming through (GP, neighbours, NHS staff) has just blown me away!
I hope that once we get through this, I can offer the same type of support to people in need. X
Hi thank you so much I will check out what you mentioned. Sending love & hope to you XX
Hi I wonder if you need help with walking the dog, The Cinnamon Trust tel no 01736 757 900 they have volunteers who may be able to help in your Area. macmillon have suggested one in my Aera. So I will get in touch as soon as I have time.
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