My husband has been diagnosed with Advanced Bladder Cancer Stage 4(TCC) I just don’t no what to do I,m 50 and feel as if our life has been taking away from us he has had his course of chemotherapy and they now have him on a treatment of Avelumab but since he has had this he is ill nothing going right had to rush him to hospital last night with extreme pain in his abdominal pain they have put him on anti antibiotics but I don’t think this is what he needs he hasn’t had bowel movement for over a week except on Wednesday which wasn’t much I am going to try him with suppository tomorrow just don’t no what to do tryed call hospital we’re he is getting treatment for his cancer but CANT get through
Hi Prince Barney
welcome to the group and so sorry to hear about your husband. I hope by now that you've managed to get through on the phone to your medical team. It's so frustrating and scary when you can't get the help or answers you need.
My own situation is different from yours. My husband (52) has a terminal brain tumour so I have no experience of the type of cancer you guys are dealing with. Sorry. There is a group on here though who may be able to offer some more info and support from folk in a similar situation. It's the Bladder cancer forum - Macmillan Online Community
I totally understand the feeling of just not knowing what to do and where to turn. I can honestly say I've never felt so useless as I have over the past few months. However I've found this group a huge support. There's always someone around here who gets it.
Please also remember that Macmillan Support Services offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available We also have our Ask an Expert section if your question is more medical or technical, but do allow two to three working days for replies from our expert team.
stay strong. Send you a huge virtual hug.
Love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
