Devastated but he is at peace now

Hi Sad00000

so sorry hear about your loss. I totally agree- this disease is cruel. 

Perhaps too soon but if you feel you need a little extra support and comfort over the coming days and weeks please reach out here or perhaps via the Bereaved spouses and partners forum - Macmillan Online Community. Remember the helpline is open to you too. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. 

I wish had the words to take away some of the pain and heartache but sadly I don't. Sending you a huge virtual hug instead though.

Stay strong. Take each day as it comes and remember all the emotions you're going through are perfectly natural. 

love n hugs

Wee Me xx

I’m so sorry Sad. I’m dreading this myself. Will be thinking of you 

Sad0000 

my heart goes out to so sorry to hear you lost your husband to this horrible disease. He is at peace now and it must be some little comfort that he died with you at home. My husband is very ill as well and I would be like you devastated.

Please try and get some rest .

Strength and hugs to you xxx

Thankyou for your reply. It is  bitter sweet it was just awful watching the pain he was in, nobody should have the pain so badly managed in this day and age. He kept saying just let me die so the pain can stop. It was the most heart wrenching experience i have ever had to go through i dont think i have much faith in the doctors now. 

The mcmillan  team were of little help  and were really only a little emotional support with a phone call or a 20 min visit but never sorted much out for us but the distric nurses were fantastic.

We did get a Marie Cure nurse for 2 nights and she was lovely.

The fast track care package we were promised never appeared and i was left to do all the lifting .getting him to toilet and personal csre on my own which was backbreaking as i am 5ft 6 and my husband was 6ft2..

Pray nobody else has to go through this. 

Love to all going through this

I’m so sorry to hear about your husband and that you had such a horrible time leading up to his passing. It seems to be such a postcode lottery of what help you get? 
I hope you can find some peace that he is no longer in pain but I’m sure it will be little consolation. I also am dreading the time when I will lose my husband to this evil disease - that always seems to get the good ones. Life feels very unfair 

We all need to be hear to support each other so I’m sending anyone in our situation a night hug  

Dear Sad00000,

I’m so so sorry… what a very sad time.  I just don’t know what to say except we’re all thinking about you and caring for you.  What a terrible time.  What a rotten disease.  I’m sending you my thoughts and a virtual hug for the days ahead.