As I put in subject I am struggling today, I had a bad day yesterday too. My husband has Mylofibrosis, vacular dementia and possible skin cancer what type we wont know until he has it cut out and we get results. I did post a message yesterday and had a lovely reply. I was hoping to feel stronger today but no. I have viewed other people in this group, how are you all coping so well with what you all have to do? I am fortunate that my husband doesn't appear to be worrying about all that is going on. He has good and bad days with the Dementia anyway, all he says about the Mylofibrosis is I will be happier when the tablets make me feel better. My children seperately are very supportive but, because they have fallen out with each other we can't have any family times together which is breaking my heart. I have severel friends who are great, they say phone if you want to talk they are always there, but you can't ring them being miserable and crying all the time. Everyone has their own concerns and worries. Perhaps tomorrow I will feel better.
Oh flavour so sorry. I have brought myself to this group tonight because my mental health is not good. My husband has relapsed stage 3 Hodgkins Lymphoma. Tomorrow he goes in for. Heart angiogram and more stents. Getting him ready for salvage chemo. Now im sending you a hug because I know this cancer carer thing can feel very claustrophobic. Trapped. I get times I have nowehere to turn. People say call me but sometimes a person on the phone saying “oh its awful” doesnt do the trick! I dont know if you feel the same but I feel very angry at the moment and Im finding im shutting off from people. Keep it short sharp and simple. Hey look me up if you fancy a chat. I dont find many people who understand the cancer carer journey. How it messes up your head and how it can make you feel very lonely and fragile. Im waiting for those feelings. Right now I think I need a panic room and a large baseball bat!!!! Take it steady and lets hope tomorrow is a better day. If not we are lucky to have this forum!! Hugs xxx
Hi Scaggette thank you so much for replying to me, you really touched a cord with me, I have tapped on friend request but not sure how it works. I do get angry sometimes, but at the moment it is trying to remember what appointment is needed when, how we are getting there then trying to remember what meds he needs and when, he already has a bubble pack, but because he has chemo tablets they do that in another Chemist so we can get them delivered. I also get a bit angry at times because my husband wants to just sit or laydown and sleep. He really could do more to keep his mind going. You are so right about people saying oh you poor thing, how much more is he going to get? He doesn't deserve this. Well you know where we are. I so agree with the lonely feeling, With all the lovely things people say they do NOT understand this type of loneliness. Have you got family? I do but they can only do so much. I really say what I want because they are all trying to stay strong for us. My daughter said come on mum don't let it get to you keep busy. I loved the hugs and I am sending you big big hugs back. When you find that panic room let me know I already have the cap might have to borrow the bat. Let me know if you get friend request I dont really know what things to tap on to. BIG BIG HUG especially for you. xxx
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