Hi
I have only just joined, but feel now I just need to reach out and hear of others experiences of caring.
My Dad was diagnosed in December with Grade 4 Glioblastoma and went through normal treatment of radio and chemo then managed a further 2 courses of chemo...unfortunately the treatment didn't agree with him and he deteriorated with regards infections, mobility issues and memory loss. He has since been told no more treatment or visits for consults, scans...as nothing more can be done. Me and my sisters now feel in limbo...what do we do now? We feel Dad has given up (maybe has for sometime) and spends most of his day in bed. He cannot move around alone but recently refusing to get up.
Has anyone else been through similar situations?
As hard as it is, I really hope he is not like this for many months to come as it just feels so unfair on him :'-(
Hi Scampy9906 I was so sorry to hear about what your Dad's going through. GBM4 is such a cruel tumour. My husband was diagnosed GBM4 in Sept last year. He had an awake craniotomy to debulk the tumour then the 6 weeks of radio/chemotherapy. After that he chose to decline any further treatment so it is just time. He had blood clot complications post surgery that also impacted things. His tumour was in the area of the brain that controls speech and language so that has been impacted from the start. It's been horrible to watch and I can't imagine how he feels inside as he won't talk about it.
I totally get that you feel in limbo. I've felt that way for months but all you can do is take it one step at a time. Be led by what your Dad wants . The watching and waiting is so hard to do but you're stronger than you think.
We're fortunate in that my husband is still physically fit. (He's 51 and is a marathon runner) He's still able to run shorter distances albeit at a slower pace than he likes but its about the only part of his "old life" he still has so I hope he can hold onto it for as long as possible. Like you I hate the thought of him being "ill" for months on end. For now he has terminal cancer but he's not ill - if that makes sense.
Not sure this has helped any. I hope it has.
Just know you're not alone. There are plenty of folk in this forum who can offer a virtual hug and listen anytime you need to vent, You're stronger than you think and you and your sisters will get through this,
Stay strong
love n hugs
Wee Me xx
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